tag:blogger.com,1999:blog-7516991800470797675.post3592082470352620720..comments2024-03-12T01:16:29.564-05:00Comments on Chronic Pain Nightmare: What is your Doctor really writing in your health record?Unknownnoreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7516991800470797675.post-45296321145340822722008-03-02T08:41:00.000-06:002008-03-02T08:41:00.000-06:00ok---logistically----how do we become the juggerna...ok---logistically----how do we become the juggernaut we need to be? Pain forums and blogs do little but offer sufferers of CP a place to gather, educate themselves, and support each other--granted, completely invaluable to the CPP who has been isloated, economically decimated, and completely demoralized (not to mention the unwilling victim of unrelenting poke-your-eye-out pain)---but as for becoming a force to be dealt with, to foment the cohesiveness and direction that is desperately needed, it is lost in the individual medical history, commiseration, and general pissing and moaning that is done----we hear "write/call your political representatives", but its like trying to bring down the russian government by throwing beets at it from india----poor planning, poor participation, poor turnout is killing us (as is poor understanding of CP, poor education of the "caregivers", lack of moral fiber on part of same, lack of research---but thats a whole 'nother post...)---WE DESPERATELY NEED A UNITED, FEARSOME VOICE, or i'm afraid it will be exactly the same for us, our families, and the poor bastards who are destined to join us on this road....Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7516991800470797675.post-63834614948770156672008-01-16T23:18:00.000-06:002008-01-16T23:18:00.000-06:00Thank you for clarifying your statement and that i...Thank you for clarifying your statement and that is quiet alright. Chronic pain is the most dehumanizing and stigamized disease in the country. Usually after a while your friends stop comming around, then your family. It is hard on your spouse because they can't relate to it. It can be the most lonley existance in the world. I have a little dog, a Bichon Frise, and I don't know what in the world I will do when he is gone. We can thank the Bush, Ashcroft, and Gonzalez administration for their "war on drugs" which has turned out to be a "war on pain patients". Don't think that congress doesn't about it also. They do. I don't think anything is going to change until until the 60-70 million people get together as a group and demand change. What is going on now is not only unconstitutional, it is profiling, and a violation of human rights. Thank you for your comments. That is the only thing that gives me the courage to keep writing this blog.<BR/><BR/>Good luck and May God bless you.<BR/><BR/>JerryAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7516991800470797675.post-66753780093656303232008-01-16T21:57:00.000-06:002008-01-16T21:57:00.000-06:00Jerry, I am so sorry for the misunderstanding. Th...Jerry, I am so sorry for the misunderstanding. The 'you' I was referring were people reading the post. <BR/><BR/>I just started writing about my situation and I got lost in it. I forgot that I was commenting on what you had said. So, 'you' appeared to be directed at you! [I had just come from a bad doctor experience , I was upset.] <BR/><BR/>Anyway, I read and agreed with what what you said...one little accident and it could be you and that 'you' was me, so I totally agree with you! <BR/><BR/>Anyway, I got lost in my speech...I am so sorry! <BR/><BR/>Okay, let me re-phrase...<BR/><BR/>---Anyway, I wrote all of this to say that a person never knows when it will be them! They can be in pain right now and be proud of how they don't need drugs. All I can say is good for them. But, one day, it can change. And what they thought was pain, they realize was nothing! I only thought I was in pain until this new pain hit me. And the only thing that kills this pain so I can at least sleep, are painkillers. Just like the name says! Kills Pain!<BR/><BR/>So, people shouldn't judge us. One little accident, and they could be one of us!---<BR/><BR/>Again, I apologize for the misunderstanding!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7516991800470797675.post-41335407356497384282008-01-16T01:40:00.000-06:002008-01-16T01:40:00.000-06:00I don't know where you got the idea that I was tal...I don't know where you got the idea that I was talking bad about chronic pain patients. I have personally been in severe intractable chronic pain for 25 years due to spinal cord damage from a medical procedure. I am a member of several Chronic pain organizations, I write my senators and congressman constantly. I know pain. It has consumed my life. I still don't know where you got that I was against chronic pain from the post I wrote. I was simply talking about words that doctors consider "red flags". You should read some of the other posts.<BR/><BR/>JerryJerryhttps://www.blogger.com/profile/06300348746153069509noreply@blogger.comtag:blogger.com,1999:blog-7516991800470797675.post-24665574594346040002008-01-15T13:04:00.000-06:002008-01-15T13:04:00.000-06:00I started having chronic pain in my teens. Years ...I started having chronic pain in my teens. Years later they diagnosed me with fibromyalgia. So, for years, I took basic otc and used alternative treatments. I was so proud of the fact that I had chronic pain and I didn't need strong drugs. I had developed this 'attitude' that you could get better if you just wanted to! I hate to admit it, but I was quite smug about how I didn't need drugs! <BR/><BR/>Well, the next thing I knew, my pain was getting worse in my neck. I had an MRI and it showed problems, minor to moderate in 5 different levels. So, I had my first neck surgery for a herniated disk. My surgeon gave me all sorts of drugs to try, but I proudly threw them away! Bragging that I didn't need them.<BR/><BR/>Then, another level [C4-5] gave me problems again, and I had another case of myelopathy and had another surgery. Then...it happened. The pain, the headaches, the nausea oh my! The surgeon didn't mess up, but something changed after that surgery. Then a disk that wasn't repaired because it wasn't 'bad enough' ruptured and the pain got worse. Finally, nothing worked...except painkillers. And after I had exhausted all natural methods and even tried injections...I found myself one of 'those patients'. One request for a painkiller and I am treated like a crack dealer. The only drugs I have in my whole house for my present pain situation is some Lyrica and a bottle of Ultram...and no refills. I was only suppose to take 3 50mg/day--it doesn't do anything. <BR/><BR/>But, I am suddenly treated differently, looked at suspiciously, and whispered about. I feel like I'm part of some sort of underworld. It's weird. <BR/><BR/>Anyway, I wrote all of this to say that you never know when it will be you! You can be in pain right now and be proud of how you don't need drugs. All I can say is good for you. But, one day, it can change. And what you thought was pain, you realize was nothing! I only thought I was in pain until this new pain hit me. And the only thing that kills this pain so I can at least sleep, are painkillers. Just like the name says! Kills Pain!<BR/><BR/>So, please don't judge us. One little accident, and you could be one of us!Anonymousnoreply@blogger.com