Chronic Pain Nightmare

Well I am back. Jerry

2011-10-15T13:21:00.007-05:00

Hello everyone. It has been a long time since I posted anything on my blog, but it hasn't stopped you folks from reading. I want to take this opportunity to thank everyone that has read and left messageses. There is actually a lot of information an it and I plan to start writing again, but probably not as frequent. I stopped because it got so hard to write about pain when you are in so much pain. we will see how it goes.

This sounds interesting for those of you like me

2009-11-08T21:40:00.008-06:00

NATIONAL PANEL SOUNDS ALARM ABOUT LACK OF PHYSICIAN TRAINING TO TREAT CHRONIC PAIN; MAJOR HEALTH GROUPS ENDORSE NEW REPORT WHICH CALLS FOR URGENT MEDICAL SCHOOL AND HEALTH SYSTEM REFORM

“Epidemic” of under-treatment affects more than 70 million Americans suffering from persistent back pain, headaches, joint pain; disproportionately affects minorities and low income

WASHINGTON, DC (November 4, 2009)-- Warning that patients shouldn’t assume their doctor has enough knowledge to treat their pain, a national panel of experts today called on medical schools to train doctors and nurses on the basics of pain care, reform the nation’s reimbursement system, and address pain as a public health crisis. The group insists that without health reforms and better training to diagnose and treat pain properly, people with untreated pain may face a lifetime of pain as a chronic illness – which could lead to job loss, depression and in some cases, even suicide.

“Doctors, who don’t lack for compassion or medical skills, often offer only limited treatments to patients disabled by chronic pain,” said Lonnie Zeltzer, M.D., co-chair of the panel, and the director of the Pediatric Pain Program at the University of California, Los Angeles. “With little or no specific training in pain management, and working in systems that make it much easier to treat common conditions like high blood pressure than a complex problem like pain, doctors may intend to help but leave most patients under-assessed and under-treated. Minorities, children and women often faced the highest risk of under-treatment.”

The panel, convened by the New York City-based Mayday Fund, included anesthesiologists, neurologists, primary care doctors, pediatricians, emergency physicians, nurses, psychologists, pharmacists and patient advocates (the full Committee is included below). After a conference in Washington D.C. and deliberations that lasted over several months, the panel’s report, A Call to Revolutionize Chronic Pain Care in America: An Opportunity in Health Care Reform, says pain is a huge public health problem. They developed several recommendations for government agencies, Congress and the medical community to address.

The report and recommendations have been endorsed by more than 30 organizations, including the American Academy of Family Physicians, American Academy of Pediatrics, The Joint Commission, American Nurses Association, American College of Emergency Physicians, and the American Academy of Neurology (the list of current signatories is below).

“As we get closer to the possibility of health care reform, the frontlines of medicine - adult and pediatric primary care - could face enormous strains from millions of new patients seeking care for pain,” says Russell K. Portenoy, M.D., panel co-chair and the chairman of Pain Medicine and Palliative Care at the Beth Israel Medical Center in New York. “Primary care is the first stop for people in pain, and both the training received by clinicians and the system of care should facilitate best practices in pain care, but this is not the way it is.”

The Mayday Fund Special Committee on Pain and the Practice of Medicine writes that chronic pain should be reframed as a chronic illness since “the burden of chronic pain is greater than that of diabetes, heart disease and cancer combined.” People in chronic pain have longer hospital stays, and many duplicative tests and unproven treatments—all of which drive up the nation’s health care spending, the panel said.

Chronic pain costs the nation more than $100 billion a year in lost productivity and direct medical costs, the report says. “This is a wasteful system,” Portenoy adds. “Major reforms in the health care system are needed if we want to improve the quality and cost effectiveness of care for chronic illnesses, and pain is as much a chronic illness as diabetes and heart disease.” Although the impact of pain on patients and on society is among the most serious of public health concerns, chronic pain has been largely left out of the current national debate on health reform, the panel writes.

According to the report, about “one-third of people in pain report that their pain is disabling and has a high impact on their ability to function in daily life. Research suggests that the high cost of under-treated pain includes lost productivity. Pain is the second-leading cause of medically-related work absenteeism, resulting in more than 50 million lost workdays.”

The authors pay particular attention to the numerous studies that suggest low-income populations, minorities, women and children are more likely to be under-treated for pain or not receive pain care at all. If doctors do not recognize chronic pain as a serious illness, or as serious as others, or they perceive that pain complaints cannot, or should not, be treated, persistent pain results. In some cases, such as pain in young children and adults with dementia, patients may not report their pain, and under-assessment drives under-treatment.

“The tragedy of this system is that it leaves many people suffering from unrelenting pain,” says Zeltzer. “Pain that goes untreated may permanently change the body’s nervous system and may lead to pain that can be managed but never goes away.”

Federal policymakers have recognized the impact pain has on individuals and the health care system and have included provisions of the National Pain Care Policy Act 2009 (NPCPA) in health reform proposals. That bill calls for an Institute of Medicine Conference on Pain; increased funding for the National Institutes of Health to collaborate across institutes to find more effective treatments for pain and to better understand the biology of pain; a grant program to improve health professionals’ understanding of and ability to assess and treat pain; and better public education so that consumers understand the danger of letting pain go untreated.

“Remarkably, less than one percent of the NIH budget was devoted to pain in 2008,” Zeltzer said. “This amount is not commensurate with a public health problem of this magnitude.”

In addition to medical school reforms and expanded funding for pain management training programs, the panel cited specific measures that would ease this public health crisis. Among them:

•Health care providers, insurers and government agencies should eliminate disparities in access to pain care related to race, gender, age and socioeconomic status. All Americans in pain, including low-income Americans, should be offered timely and effective treatment for their pain.

•Government, health care payors and providers should develop coordinated health information technology (IT) systems to track pain disorders and treatments. Computerized IT systems can boost physicians’ knowledge about the best treatment for pain by providing them with best practice information quickly.

•The Department of Health and Human Services should reform payment to eliminate the current incentives that drive pain care toward procedures or unproven treatments. Primary care doctors should be reimbursed for the time it takes to provide comprehensive pain care to patients who are disabled by chronic pain—a system that can cost a little more up front, but often reduces the cost of treating pain over the long haul.

•The Surgeon General should mount a public education campaign to inform the public about the risks associated with under-treated pain. Consumers should understand that if they wait too long to treat acute pain they run the risk of developing a chronic syndrome, one that’s costly to treat and potentially disabling.

“Reducing the burden of uncontrolled chronic pain is a societal necessity, a medical challenge and an economic requirement,” the panel says.

The Mayday Fund is a New York City-based private philanthropy dedicated to alleviating the incidence, degree and consequences of human physical pain. The Mayday Fund does not lobby or retain individuals or organizations to lobby. The panel participants are listed below. To obtain a copy of the report please visit www.MaydayPainReport.org. This article is the pain of the mayday Fund.

http://www.maydaypainreport.org/release.php

Sometimes I feel like pulling my hair out

2009-09-12T16:35:00.011-05:00

I will explain my title shortly, but first I would like to thank everyone for their comments. I had planned on giving up on my blog. I have been at this for almost 25 years, calling and writing congressman and senators, join other organizations. You name it I have done it. Of course like everyone else I am getting older, the pain is getting worse along with other problems, so after the post in February, I said to hell with it.

Then the comments and e-mails started coming from everywhere, so it gave me the courage to start making entries again. I know it will be through tears at times and anger at others, I will try again. For that I have you to thank, so I will continue as long as I can.

As for as the title, Sometimes I feel like pulling my hair out . We have now gone to 78,000,000 million people like you and I, living in CHRONIC PAIN . Are we any closer to getting help? HELL NO. If anything we are further away than ever. We all know the situation with the medical community. Most of them have opiodphobia which in itself is a mental illness.

A couple of months ago my primary care DR. that helps me, looked at me and said, you don't look right. I replied that I didn't know what he was talking about. He said that my eyes had bags under them. I replied that I didn't get much sleep the night before. He then said, have you been drinking? I said drinking, I don't even drink. I reminded him that I told him that I didn't drink on my first visit to him. He said would you be willing to take a drug test. By this time I was getting mad and I said Dr. knock yourself out. Take all the tests you want to any time you want to, because you want find anything with the exception of what is supposed to be there. So he sent me down for the test and sure enough he found nothing. The next visit he apologized. But that is the way I live, from visit to visit and I am sure most of the rest of you do also. I don't know about the rest of you but I am so tired of living like that.

Wouldn't it be nice if we got half the amount of good publicity as the drug dealers do bad. I don't know why the news media has to make everything about us so negative, but they have succeeded scaring most of the Dr's. in the nation to death. If that wasn't bad enough the average person feels the same way. I JUST WONDER IF THE THOUGHT EVER CROSSES THEIR MIND THAT THEY COULD BE THE NEXT PERSON TO BE IN CHRONIC PAIN. Even my own family has made statements about me getting addicted to opioids.
I was talking to my sister a couple of weeks ago and she is a registered nurse. She said what you need to do is get off of those old narcotics and starting some exercise and you will feel better. There was dead silence on the phone for a while. She asked me if I was still there. I know smoke must have been coming from my ears.
I said yes but I cannot believe that you would make a remark that STUPID. I said, how many times have I told you that I can't even get out of the bed most days without taking pain medicine. I cannot believe this country has been brain washed to be so cruel to poor people in unbearable pain but they do.

Well I have to go. I am to angry to write any more.

My life: Unrelenting Pain and Fear

2009-02-16T00:32:00.008-06:00

Everyone in chronic pain can relate to the part about "unrelenting Pain", no matter what is causing it. The same thing day in and day out. It doesn't stop for birthdays or any other day for that matter. Some of us are in pain as a result of a fall, a auto accident or some disease like fibrormyalagia. It really doesn't matter, its all pain. Its hard to believe that a country as advanced as the USA Can have 78 million people that live this way but its true. the Suicide rate is 4-5 times higher than other people and lets face it, there is probably not a single one of us that haven't thought of taking our lives at on time or the other. I certainly have.

Every day I read about some new pain drug coming on the market to fight pain. I ask myself why, because you can't find a doctor to prescribe it to you. What is going on in this country right now with the way chronic pain people are treated is a damn disgrace. I have someone that is helping me now but as always its not enough but it does help. He is my primary care physician.

FEAR the other word I talked about is something we all live with. Fear of what you may ask? Fear that if you have not found a pain doctor, that you never will find one. The other side of it is you have looked and looked and finally found someone to help you, but what would you do if something happened to the doctor you now have, or if he told you he didn't want to help you any more. I live in fear of my doctor saying he is going to stop helping me. I have no idea where I would turn. It took me a year of practically begging but then one day I asked my wife if she would go with me. My wife talked to him for quiet a while and that was the key. He agreed to help me. (That is a tip by the way). Another, tip is always go well dressed and have your spouse do the same. My wife always goes with me on every visit.

I still live in fear and dread every time I have to call for a refill. Such is the life of the chronic pain person

The Stigma of the uneducated Medical Profession.

2008-12-23T23:51:00.007-06:00

This post #3 of 3. For those of you who want to read it, Please drop down to post #1 and read up. I have lived for 26 years now with Chronic Pain in my lower back and nerve damage due to a new procedure and an inexperienced Surgeon. I am sure that some of you may be asking why in, the hell I am writing about an abdominal surgery.

1. Opiods can in fact cause abdominal problems because one of the side effects of most of them is constipation which can lead to blockage in the small intestine.

2. Because of the stigma associated with people in Chronic Pain, you can be mis-diagnosed by many idiot surgeons who think they are "little gods". Not all Surgeons are that way but many are. If you take any kind of pain medication for chronic pain, you are a drug addict. That's just the way it is and I DON'T HAVE ANY HOPE OF IT CHANGING ANY TIME SOON.

2. next thing that will happen is you will be treated and talked to like a dog.

I still find it hard to believe that you actually pay someone to treat you like I was treated. I had planned to wait until the next day to go back to the hospital day, but it was a good thing that I didn't. I had a high fever and my kidneys were failing. They had to put me on an IV. for 3 days to get my kidneys functioning again. As said before 2 of the 3 doctors refused to operate on me because they said I was a DRUG ADDICT and that was what was causing my problem.
One of the doctors even yelled at me in front of about 10 nurses that I was nothing but a "damn drug addict". When she left 2 of the nurses were very angry and asked me if I wanted to speak to the Patient advocate in the hospital. When I told her what had happened she covered her face with her hands. That doctor regrets what she said, because she had to go before the vice-president of the hospital and apologize to me.

The one Doctor who was so nice to me said that taking opiods had nothing to do with my problem. He did say since nothing showed up on the test he would have to go in and do exploratory surgery. He said he would have to pull every bit of the small intestine out and inspect it an it was a risky surgery. He told me the small intestine was approximately 23 feet long. I couldn't believe it.

I agreed and the next morning I was in surgery. What he found surprised even him. A large ulcer just like the kind you have on your lip had some how gotten down into the intestine had grown for a while leaving a growth inside the intestine blocking it to smaller than a pencil. He took a photo of the section he cut out. I will forever be grateful for this one mans experience and compassion.

It has been a painful 2 months on top of my chronic back pain but I have recovered from that.

Now why did a man with debilating back pain write about this surgery.

Because there is even more of a stigma against chronic pain people than even I ever dreamed after 26 years. Sooner or later you are going to find yourself in this situation. If you are on strong pain medication, you will be treated like dirt and I mean by the doctors. Don't hesitate to ask for a second opinion. Don't be afraid to ask to talk to the patient advocate. Every hospital has one and that is what they are paid to do. I hope this helps someone.

4 trips to the Emergency room in one month

2008-12-12T02:45:00.012-06:00

POST # 2 OF 3.
I decided to break this down into 3 posts because to tell the whole story would be to long, and I couldn't sit here that long. Everything I am writing is true and happened to me just 6 weeks ago. In order to under to understand the whole story, please drop down and read post #1 first.

One Sunday in September. I started getting sick at my stomach and as the day wore on it got worse. Finally I was so nauseous that I did what we all have done at some time in our life. I walked in the bathroom, stuck my finger in my mouth and started vomiting. I wasn't prepared for what happened next. The first couple of times it was the contents of my stomach. But after that I couldn't figure what was going on except I knew that I was very sick. Then it dawned on me, I was throwing up my own BODY WASTE OR BILE.

My wife rushed me to the emergency room of the largest room in Pensacola, Florida where we live. We sat in the emergency room for 7 hours waiting for a bed to come available. Finally we got to see a Doctor in the emergency room. I was trying to drink all of the water that I could because I was becoming dehydrated fast. The Doctor said I had a blockage in my small intestine, so the started running tests. The best test they have for this is drinking a big jug of contrast material, and have a CT scan. I kept at he contrast in my stomach just long enough for them to get a couple of pictures before I threw that up also. After what seemed an eternity the doctor came back in and said that nothing showed up on the scan to indicate a blockage, that it had probably worked its self free. The Son-of-a-bitch said they needed the bed for other patients and discharged me. My wife and I could not believe our ears. By stomach was starting to swell and I was in a lot of pain. After a very heated exchange I signed the papers and left.

All day the next day was a living hell for me. By this time You could place your hand on by abdomen and feel the intestines Turing and twisting in my stomach.

That afternoon I was back at the emergency room for the same thing. This time I saw a different doctor and after seeing the shape I was in and reviewing my chart he said you need to be in the hospital, so he had me transferred. The next day they were doing more of the same type tests they had done in the emergency room and came up with the same conclusion. After staying in the hospital and taking tests for a week, they discharged me and told me to try it for a few days. The same damn identical thing happened. There were 3 specialists working with me. The chief of surgery was a very nice and compassionate man. He told me that since nothing showed up on the test he needed to go in and do exploratory surgery and take all of the small intestine out, which by the way is 23 feet long, and inspect every bit of it.

The other 2 doctors thought they were little gods and were cruel as hell. By this time they had looked over my medical records and they had the answer, they thought.
Because of the narcotics I was taking (their words) It was putting my bowels to sleep. Bullshit I said, I don't have any problem going to the bath room I told them.

I ran both of them out of my room after one of the called me a drug addict. The next day the nice doctor who was Chief of Surgery told me that if I wanted him to go in and do the exploratory surgery that he would. He said if I wanted to go home for a few days and think about I could. I agreed but I should have stayed in the hospital then and let him do it, because it almost cost me my life.

My recent month of hell in the hospital

2008-12-06T00:38:00.008-06:00

#1 of 3 Articles on this subject Start here and read up Please.

As you can tell from my last entry it has been quiet a while since my last post and to be honest with you, I wasn't sure I ever would. I am doing this because what I have to say is important, especially to those of you who suffer from chronic pain as I do. I get so angry when I start writing about it, it is hard to keep going. but I promised myself that I would make this post if it took me a week.

For those of you like myself who have suffered from chronic pain, especially any length of time, also suffer from depression. Of course this comes under the heading of MENTAL ILLNESS. TO THE UNEDUCATED, THIS IS IS A SCARY WORD. I knew the stigma that used to be attached to mental illness, but since my focus has been on the spine which is my problem, I had paid very little attention to mental illness in the last few years. I have a great phyciatrist that I have been
seeing for 15 years. I have panic attacks also even though I don't have any phobias. He has me on xanax and paxil. I see him every 3 months he writes my prescriptions and I leave his office. No big deal, Right. !!! WRONG!!!!!!

Because of trying to deal and live with my spinal problems, I had never given much thought to mental illness and the digestive system. Some of the things that I have to say are going to be a little unpleasant to read but they are important because I just finished going through every bit of it to.

In mid-September I started having severe burning in my lower abdomen and I noticed that it was starting to swell. Next came the worst nausea I have ever experienced. I finally became so sick I walked into the bathroom, got over the commode an stuck my finger in my mouth, thats all I had to do. I wasn't prepared for what happened next.

While opiates are the answer to prayer for so many of us, there is one thing that people who take them like me should be keenly aware of and that is what they will do to your digestive system. Yes I am talking about constipation. I just finished a month of hell in the hospital and have a 14 inch scar down the center of my abdomen. As I was vomiting I wasn't ready for what I saw next. I was throwing up my own body waste or bile. I was in and out of the hospital 4 times in a period of 5 weeks. I was not prepared for what I had to go through in the hospital, but more than that I wasn't prepared for the way I was treated by the Doctors and some of the nurses.

I will get into it more in my next post.

Living in hell-but you are still on earth!!

2008-08-19T01:14:00.005-05:00

I am at the point now, when I start a post I usually go through a series of emotions. Who in the hell wants to read about PAIN? Sometimes when I try to write, I become angry when I look back at my life, I think back to the day of my accident. Sometimes I just sit and look a my computer screen. Finally I turn it off, lay my head down and cry. It is becoming increasing harder to write about pain when you are suffering so much. I don't know what drives me anymore.

I don't seem to ever be satisfied with what I have written about Chronic Pain. Often I will see a story on T.V., but its always about the addict and those terrible narcotics. I watched a story on Fox news a couple of days ago. It was about school kids and and the majority of kids said they gained access to their parents prescription drugs. Something is wrong with this story. Where in the hell did their parents get so many opioid and opiate type drugs, that they could just leave them lying around in their medicine cabinets.

When I hear unsubstantiated stories like this from the news media, I go into a rage.
They don't know or understand because for whatever reason this is the position of all of the news media. As for as that goes the general public have the same attitude.
If you take any of the powerful drugs, you are a drug addict. That is simply not true. Unfortunately, it has to strike close to home or to the person themselves before they really understand what a pain epidemic we have in this country. It takes only a split second to go from a happy active person to a vegatible that relies on this powerful pain medication to sustain life.

There is not a day of my life that I don't feel like taking my 40 Cal. automatic pistol that is loaded with hollow point rounds and sticking it in my mouth. The only thing that has stopped me is my faith in Christ, the love of my family and last I really don't want to die. Everyone has a breaking where they can't stand it any more. The suicide rate in this country is 5 times higher for people in chronic pain versus people who are not. So Please, to all of the politicians, DEA, and doctors out there. There are over 75 million of us are suffering this agonizing pain 24 hours a day, 7 days a week. All we want is a life, not to sit around getting adicted to drugs. We are citizens of this great country also and should be afforded the same right to life in peace as everyone else.

More on the abuse of the Spinal Cord and Epidurals.

2008-07-27T00:10:00.010-05:00

I would like to go a little further on procedures like the Epidural shot and the potential dangers that could come from it. I personally will never have another Epidural shot or test involving a needle inserted into my spine. While I am not a Doctor, my years of procedures and surgeries, sitting up late at night has given me a great deal of knowledge on pain, because I live with it day and night. One thing I have learned the hard way is just because the FDA approves something, does not mean it will help you with your problems. They are a panel of 5 Doctors and they are under a lot of pressure from congress, sometimes just one congressman to approve whatever product or medicine is involved. For example if the company that is going to be making the product falls in a certain congressional district this is where the lobbying kicks in.

You have heard me talk about Dr. Charles V. Burton, Neurosurgeon. I really hope you go this article on his site and read it in its entirety. All surgeons would do well to read his information.

"This illustration (from Noback CR: The Human Nervous System, McGraw-Hill, Inc., 1967) illustrates the human subarachnoid space surrounding the brain and spinal cord. 60% of spinal fluid is produced within the brain and 40% from the spinal subarachnoid space. It flows, as shown, and is absorbed by the venous arachnoid granulations. This spinal fluid is produced at the rate of 0.35cc/min, or 500-750cc/day. Turnover rate is 3-5 times/day. A normal adult has a ventricular volume of about 30cc and about 100+cc in the surrounding subarachnoid space. The subarachnoid space serves to be a hydraulic cushion for the floating brain, a source of nutrition as well neurotransmitters. This space is the most fragile and sensitive environment in the body.

When the subarachnoid space is subject to insult or inflammatory change damage and scarring occur. One of the primary difficulties in addressing the subject of neuropathologic change, particularly that of adhesive arachnoiditis is the great amount of confusion regarding nomenclature. Adhesive arachnoiditis is an advanced form of arachnoiditis and is most often confused with the latter. Some of the other terms by adhesive arachnoiditis has been referred to have been:

Serosa Circumscripta Spinalis
Intraspinal Granulomatosis
Obliterative Arachnoiditis
Chronic Arachnoiditis
Spinal Meningitis
Chronic Spinal Meningitis
Chemical Meningitis
Sterile Meningitis
Granulomatous Meningitis

Once one has gotten beyond the "Tower of Babel" part of the semantic issues it is important to look closer at the normal anatomy of the lumbar spinal column, the dural membranes, and the subarachnoid space. In the image, to the left, the nerve rootlets of the cauda equina, which are in motor and sensory pairs, are shown as single nerves for simplification. If a lumbar puncture were to be performed the needle would simply push the nerve roots, floating in cerebrospinal fluid, out of the way. If a similar procedure were attempted in a patient with Class III Adhesive Arachnoiditis, where the nerve roots were fixed to each other and to the dura mater, the needle could easily injure or sever the nerves."

Please go to http://www.burtonreport.com/InfSpine/AdhesArachAnatomy.htm

Information on the Epidural shot

2008-07-12T01:29:00.012-05:00

So just what is an Epidural shot. There is a group of Doctors who have carved out a nice "little niche" for themselves called Pain Management Specialists. What they do primarily, is inject steroids and other pain medicine into the epidural which is the outer layer of the spinal cord depicted in green in the photo to the left. Most of them like to do a series of 3 shots to the tune of about $2,000-$2,500 dollars. If this procedure gives any relief at all, it is for about 2 weeks. Most of these doctors are anesthesiologists and while a few of them will work with you with powerful pain medications, the majority send you back to your primary care physician for him to prescribe them to you. I know because I have been through it. The ones that only want to do the epidural shots are called "procedure mills".

They use the excuse that you might become addicted. First of all, they don't even have their terminology right. The correct word is "chemical dependency" which is a normal occurrence with opiates. If someone wants to continue taking these drugs after they no longer need them, or just try to get them for the so-called high, then they are addicts. Surveys have indicated that only 1% to 3% of chronic pain patients ever get addicted. To get off of these drugs, all you do is slowly reduce your dosage until you are off of them. I have done it 15 to 20 times myself. It is a hell of a lot easier to get off of opiates than getting off of nicotine. I can also say that from personal experience.

The epidural marked in green, looking down on a disc showing the spinal cord in the center where the blue dot is and the green is the epidural or the outer wall of the spinal cord. The other clusters are nerves that come out of the spinal cord and go to places all over your body. You will understand better if you read what Dr Burton has to say. Then go to his website to read the entire article. If you want to learn now is the time, especially if you have back problems like I do.
According to him the spinal cord is the most fragile, yet the most abused part of the human body.

http://www.burtonreport.com/InfSpine/EpiduralSteroidAnatomy.htm with the permission Of Dr. Charles V. Burton, a board certified neurosurgeon, who is the top spine surgeon in the USA. If you have any kind of spinal problems you need to go to his site, http://www.burtonreport.com/ .

"The epidural space is an anatomic structure that surrounds the dura mater within the spinal canal and extends to the brain itself. In some areas it is a real space and in others only a potential space. The space itself consists of fat and blood vessels. Its importance is based on the fact that many physicians have selected this site as a depository for injected medications as a treatment for low back pain.

The illustration to the left represents a post-mortem axial section of a normal lumbar spinal canal. The vertebral body is shown at the top and the lamina of the vertebrae at the bottom. The epidural space surrounds the dural membrane. Only the posterior portion of the epidural space is outlined in green as this is the area of clinical interest.

The blue dot has been inserted intracathecally, that is, within the subarachnoid space. The subarachnoid space is one of the most fragile, delicate and sensitive areas of the human body. This space contains the brain, spinal cord and nerve roots of the cauda equina. It is filled with cerebro-spinal fluid which acts to support and nourish the nervous system. The subarachnoid space is very sensitive to insult while the epidural space is very resistant to insult. Unfortunately they are separated by only a thin membrane, the dura mater lined by an even thinner membrane, the arachnoid membrane.

In this diagram the site of the epidural space is highlighted with a green dot (which lies on the dura). In this representation the dura and the underlying arachnoid membrane are both shown. Note that the epidural space is separated from the subarachnoid space by only these thin membranes. When a needle is used to deposit substances, such as steroids, in the epidural space the procedurist (physician performing the injection) has the responsibility of accurately placing the material in the epidural space because only a slight inaccuracy permits the steroid entry into the subarachnoid space thus introducing the risk of adhesive arachnoiditis ".

Go to Dr. Burtons website to see the rest of his article.

Politics and Pain

2008-06-25T00:45:00.007-05:00

It has been a while since I posted, so I am going to start tonight, even though I am in so much pain I can hardly sit in my computer chair. My body is telling me to give up, that I am doing no good, then I will get a nice comment or e-mail and it then it gives me the courage to go on. There so many people just like me, either lying in bed with out the strength or courage to get up, while others are sitting in pain and and loneliness, staring at life passing them by, remembering plans and dreams they had for life or retirement. We aren't talking about a few thousand people, we are talking about 75 million people.

It is absolutely insane, what is going on in this and other Countries regarding Chronic Pain. In our country, the source for it is in the little photo to the left. They could also come together as it is non-partisan and do something to correct it.

Its that time again and I'm sure like me, you are tired of all of the phony promises. I don't know where they have been for the last 4 years, but it sure as "hell" hasn't been working for solutions for people living this ghastly life of Chronic pain. I can only speak for myself, but when it comes to trying to describe Chronic pain, I have no words to describe it to the point that I feel I have gotten my point across. When you have 75 million people suffering like I am, you have an epidemic on your hands. Even many of our wonderful military men and women who come home after being blown to hell by IED's or other ways are having the same problems, getting the powerful medication that it takes to knock out their pain.

This medicine is not illegal folks. It was approved by the FDA just for this purpose, yet all you hear is addiction, addiction. There no studies that I know of that shows a high level of addiction with people who live in chronic pain. I have researched this mess for to long. Most studies I have seen, have been around 2 to 3%, and for 75 million people that is nothing. Most people in chronic pain who are lucky enough to get someone to help them, hate taking the damn stuff because of the side effects. We are not lucking for a high, we are looking for a life. Most of the time we not only have to suffer from the pain, but we suffer the humiliation by a Dr. yelling at you about getting addicted. Most of them don't have enough education on it to know the correct words to use.

Its Chemical Dependency Doctor!!!! To be fair, all Doctors are not this way. We have many wonderful physicians who are educated and compassionate. They are just caught between a "rock and a hard place" with the justice dept. The Senators and Congressmen could put a stop to this insanity by putting control of the medical profession back where it is supposed to be, with the state medical boards. Then the DEA could get back to the job of stopping this massive amount of illegal drugs coming across the Mexican border. Yes there is an illegal drug problem in this country and I am all for going after them, but please not the doctors, and pain patients who can hardly make it through the day.

These politicians want your vote, so please do what I have done and continue to do. Write them, Call their offices. Its obvious from polling data that this country is fed up with politicians who forget who they represent. People are angry and their patience has grown thin, so no matter what state you live in, please jump in let them know that pain is a human issue, not a partisan issue.

Benefits versus risks of taking Opioids

2008-05-21T00:22:00.009-05:00

I wish every Doctor and the DEA would read articles like the one below. I was reading a news story last night about a DEA agent that was injured while on a raid. Now he is on a morphine pump and he talked about the difficulty in trying to get a doctor to treat him. We are all at risk here folks. It can happen to anyone. That's why it is so necessary for there to be more education about opioids and why they will stop severe pain when nothing else will. There is really a lot of research going on in this area. I just hope it doesn't fall on deaf ears.

As controversy swirls about proper clinical use of opioids and other potent pain medications, research reported at the American Pain Society annual meeting shows that, contrary to widespread beliefs, less than 3 percent of patients with no history of drug abuse who are prescribed opioids for chronic pain will show signs of possible drug abuse or dependence. In his plenary session address, Srinivasa Raja, MD, professor of anesthesiology, Johns Hopkins University Medical School, urged clinicians and policy makers not to allow the small percentage of abused pain prescriptions to prevent legitimate pain patients from getting the care they need.

"Physicians today face a dilemma in trying to balance the needs of their patients with demands from society for better control of opioid medications. We also are dealing with unfounded accusations in the media that increased prescribing of opioids for severe chronic pain is responsible in large part for reported upswings in the abuse of pain medications," said Raja. "We do need stronger evidence about which patients will benefit most from these medications to help make better prescribing decisions," he added. "But for most chronic pain patients, drugs are not the sole solution. More and more studies are showing that multi-faceted treatment involving physical and cognitive-behavioral therapies and appropriate interventional strategies lead to the most favorable outcomes." According to Raja, the problem of prescription drug abuse can best be attacked and hopefully solved through collaborations involving care givers, regulatory and law enforcement agencies and the pharmaceutical industry.

"First, I believe physicians should be diligent is communicating with their patients about the benefits and risks of opioids and also screen them for drug-seeking behavior and other warning signs of potential abuse," said Raja. "Also, we must monitor patients carefully to determine when doses can be lowered over time as they improve their pain control and overall functioning." The message for law enforcement and federal and state regulatory agencies, first and foremost, is to strive for state-to-state consistency in regulating controlled substances and crack down on illegal internet pharmacies and prescription thefts and forgeries. "Progress is being made as there is increased awareness of the source of prescription opioids being diverted into the illicit market," said Raja, "and states and municipalities are stepping up their teen drug awareness education programs."

For pharmaceutical manufacturers, Raja said the key challenge is to match clinical needs for less addicting pain medication with drug development priorities. "There are novel analgesic formulations in various stages of development that we hope can be prioritized and expedited for clinical use," he said. Raja noted that fifty years ago, a commentary published in the Journal of the American Medical Association recommended that opioids should be avoided in treating cancer pain because of possible addiction, and 20 years ago it was believed infants didn't feel pain and shouldn't receive anesthesia. "We abandoned such faulty beliefs as scientific evidence proved otherwise," he said. "Now I hope history repeats itself in changing professional and public attitudes as we now know opioids are effective for treating chronic non-cancer pain and that very few legitimate pain patients abuse their medications.

Hopefully, the evidence will foster a middle-ground approach that protects the rights of patients and clinicians while upholding society's right to control medication abuse and diversion."

http://www.medicalnewstoday.com/articles/107028.php

Pink Pearl Girl's Migraine World: Pain Medication Does Not Lead to High Risk of Addiction

2008-05-17T23:40:00.000-05:00

Pink Pearl Girl's Migraine World: Pain Medication Does Not Lead to High Risk of Addiction

Opioid use and sexual dysnfunction

2008-05-08T01:38:00.010-05:00

I Came across this article that some of you may be interested in. I'll have to say that if you are in the kind of pain that I'm in, sex is the least of your worries. It does go to show you the amount of research that is going on but until the public, the medical profession and the Justice Department takes a different attitude about the millions of people that are suffering, and educate themselves on the use of opioids, I can't see where the great research being done is going to help. It is so sad that millions of people like me have to suffer so much because of the ego and stupidity of a few. It is happening though, every single day.

"Unfortunately, chronic pain and sexual problems often go together. Yet, many patients suffer in silence, healthcare providers rarely ask about patients’ sexual concerns, and guidance literature on the subject is relatively scarce. Ironically, the long-acting opioid medications prescribed to relieve patients’ pains often are the source of sexual dysfunction.

In an evidence-based commentary article for Pain Treatment Topics – “Opioid-Induced Sexual Dysfunction: Causes, Diagnosis, & Treatment” – Stephen Colameco, MD, MEd, discusses the problem and how healthcare providers can help their patients.
Considerable evidence suggests that long-acting opioids used on a daily basis for more than a month can reduce hormonal function in both men and women. Besides sexual dysfunction, symptoms can include weight gain, fatigue, depression, osteoporosis, and irregular menstrual cycles.

These problems can be treated, if they are properly diagnosed, but different approaches are needed in males and females. Colameco provides a number of recommendations:
-- Prior to the initiation of therapy, prescribers should inform patients that hormonal disturbances are common with higher dose, long-term opioid treatment.
-- After treatment is started, patients should be routinely evaluated for signs and symptoms of hormone deficiency, including sexual dysfunction.
-- When hormonal deficiency is suspected, appropriate laboratory testing should be ordered.
-- An important treatment in men often is testosterone supplementation. Topical, buccal, or transdermal formulations are preferred over intramuscular injections.
-- In women, testosterone treatment is controversial and supplementation with DHEA/DHEAS may be preferred due to its ability to raise hormone levels without significant side effects. Alternatively, rotation from one opioid medication to another may be effective.

In sum, opioid treatment is intended to reduce patients’ pain, and to improve physical and social functioning. Opioid-induced hormonal deficiencies and associated sexual dysfunctions are common and often overlooked consequences of opioid therapy. If left untreated, they may negate the potential benefits of this analgesic. It is hoped that through a better understanding of these problems opioid therapy can be more effectively used in the treatment of chronic pain.
The complete article (8 pages) is available for free access at:http://pain-topics.org/clinical_concepts/comments.php#Colameco ".

Fibromyalgia-Chronic Pain and how it effects the brain

2008-04-19T01:06:00.009-05:00

Even though My chronic pain does not come from fibromyalgia, there are millions of people suffering from it, and my heart goes out to them. It is hard to believe that some doctors still doubt its existence, but that is ignorance on their part of as for as I am concerned. There are to many great researchers that have come forward with evidence of the debilitating and deadly disease, to have anything but compassion for those people who suffer from it. I have a sister-in-law who suffers from it. I have watched her go from a vibrant young woman who ran several miles every day with a set of weights in each hand, to an over weight person who rarely gets out of bed anymore. We correspond by e-mail and she can relate to me and my condition better than my wife, because like me, her life is one constant nightmare of pain.

"Researchers at the University of Michigan Health System have found a key linkage between pain and a specific brain molecule, a discovery that lends new insight into fibromyalgia, an often-baffling chronic pain condition. In patients with fibromyalgia, researchers found, pain decreased when levels of the brain molecule called glutamate went down. The results of this study, which appears in the journal Arthritis and Rheumatism, could be useful to researchers looking for new drugs that treat fibromyalgia, the authors say. "If these findings are replicated, investigators performing clinical treatment trials in fibromyalgia could potentially use glutamate as a 'surrogate' marker of disease response," says lead author Richard E. Harris, Ph.D., research assistant professor in the Division of Rheumatology at the U-M Medical School's Department of Internal Medicine and a researcher at the U-M Chronic Pain and Fatigue Research Center.

The molecule glutamate is a neurotransmitter, which means it conveys information between neurons in the nervous system. When glutamate is released from one neuron, it diffuses across the space between cells, and then binds to receptors on the next neuron in line and causes the cell to become excited, or to be more active. This molecule was suspected to play a role in fibromyalgia because previous studies had shown that some brain regions in fibromyalgia patients appear to be highly excited. One such region is the insula. In functional magnetic resonance imaging (fMRI) studies, researchers at U-M had previously shown that the insula displays augmented activity in fibromyalgia, which means neurons in these patients are more active in this part of the brain.

The U-M team hypothesized, Harris notes, that more activity among these neurons might be related to the level of glutamate in this region. To gauge the linkage between pain and glutamate, the researchers used a non-invasive brain imaging techinique called proton magnetic resonance spectroscopy (H-MRS). H-MRS was performed once before and once following a four-week course of acupuncture or "sham" acupuncture. Researchers used either acupuncture or sham acupuncture to reduce pain symptoms. The sham procedure involved using a sharp device to prick the skin in order to mimic real acupuncture sensations.

Following the four weeks of treatment, both clinical and experimental pain reported were reduced significantly. More importantly the reduction in both pain outcomes was linked with reductions in glutamate levels in the insula: patients with greater reductions in pain showed greater reductions in glutamate. This suggests that glutamate may play a role in this disease and that it could potentially be used as a biomarker of disease severity. Because of the small number of participants in this study, further research should be conducted to verify the role of glutamate in fibromyalgia, Harris says. "

Everything in quotes is research information from the University of Michigan.

http://www.med.umich.edu/painresearch/patients/fibromyalgia.htm

Not in America

2008-03-25T00:11:00.008-05:00

It has been a while since I have posted anything. Lately I have just opened it up and looked at all of the posts I have made night after night and then just close the blog again. Frankly I am tired of being in pain, tired of sitting up until 4:00P.M. in the morning because I am in to much pain to sleep. You will have to forgive me tonight because I certainly don't feel like writing about pain. I keep asking myself over and over, how could this be happening in this country, a country that so many men and women have fought and died for to protect our freedoms.

I myself am a veteran of one of those wars. There have been instances in war where several men and aircraft have been sacrificed just to save one life. Why? Because that is America. That is the country I love and was willing to die for. So why do so many people have to suffer like I do. We have large medical facilities and every day it seems like more new research is discovering some new disease, medication or a better way to take the ones that have been proven to work.
Practically any morning you can turn on the news and find hundreds of volunteers out searching for a lost child, or 2-3 fire rescue engines trying to rescue a puppy. Why do we do this? Because we are a compassionate people. That is the America I know and love.

America has a dirty little secret that most people don't understand and that includes the medical profession for the most part. The ones who do, don't want any part of taking care of people like me because we are to much trouble, or to much regulatory scurnity to bother with it. I always wandered, how can a doctor let someone leave his office, take his money, yet do nothing to help that person. The most delicate part of the human body, the central nervous system, is also the most abused part of the body. Once you have some type of disease, or have an injury that breaches the CNS you are in a for a lifetime of living hell. My own injury was caused by a orthopaedic surgeon using a new procedure, that he had, one days training on.

Chronic Pain has stolen my live for the last 25 years. Not only do I have to live that way but I have to live the humilation of trying to find a Doctor to help me. All over America people just like me by the millions are lying in pain or perhaps sitting up like me because they are in to much pain to sleep. It doesn't have to be that way for the 70 million plus people who live the nightmare of pain that just want go away, that stays with you night and day. No it doesn't have to be that way at all.

You see the drugs that will stop that kind of pain, are the same ones sought after by drug addicts. I know there is a drug problem in this country. Drug abuse goes back to the early Roman Empire. I as a person who now lives in Chronic Pain simply cannot relate to anyone who would want to take these powerful drugs just for fun. I know one thing. With almost 1/4 of the population living like this and several thousand killing themselves ever year, because it just becomes to painful to live, it is time for the politicians to get involved and make some legislation clear enough that people who are dying, get the treatment they need and at the same time not tie the hands of the DEA from getting the real drug abusers. I don't blame the DEA. I blame the Congress and Senate, first of all for not taking it seriously as a problem, and not writeing clear and concise laws so the law enforcement community and the medical community know will know what to do. Wake up Washington, D.C. This is America not some third world country. We believe in saving lives here, not taking them.

I wander if they have ever given a thought to the fact that anyone, even them could go from being perfectly healthy to a vegtable like me in the blink of an eye. I know because that is the way it happened to me.

Genocide in America

2008-02-17T00:07:00.009-06:00

I am sure after a title like that you are probably asking yourself, what in the hell is he talking about? I love this Country. I am a Viet Nam Veteran. I have never taken the freedoms we have in America for granted, but there are things going on that you almost never here about in the News Media. We have always had our share of things in the past, as a compassionate people, we are not proud of. Usually it is after the fact. Example: The internment of Japanese Americans during World War II, the so-called Insane asylums and things done to these poor people in the name of medicine in the 1940s-1960s. I once had the disgusting opportunity to tour one. Of course, who can forget the movie, "One flew over the Coo-Coo's nest". Actually, it wasn't far off the mark.

I'm sure you are saying O.K., so what has all of this got to do with genocide in present day America. If you knew what I know then you would understand when I say that we are in danger of becoming a "police state" and even now a certain group of people are already having their civil rights trampled on, profiled like comman criminals, accused of being drug addicts, having compassionate doctors raided, jailed and accused of running "pill mills", when in fact all they are guilty of in most cases, are keeping people like me alive.

There is a disease in this country right now that goes virtually ignored, untreated and stigmatized. That disease is Intractable Chronic Pain. I know, the usual reaction is hell, pain is not a disease. A little pain never killed anyone, besides I have been in pain before. If you are one of those people who feels that way, then my best friend, "Jesus Christ" said it best in the Book of Proverbs. "My People Perish for lack of knowledge".

I would say you are uneducated to what is going on at this very minute in this country and so would 72.5 Million other people who are in pain, with 30 million of those just like me, living in severe intractable chronic pain. I have another "news flash" for you. You could become like me in the blink of an eye. Doomed to a life of agony and unbearable pain for the rest of your life.

Once you breach the central nervous system, (spinal cord) in any way my friend, You are in for a life time of agony. It could be an auto accident, motorcycle, a simple fall, playing sports or in my case the results of a surgical procedure gone bad.

If you really want to know some of the things that are happening right now, click on this link http://painreliefnetwork.org/index.html .

I am dieing myself, from 25 years of unrelenting pain, 24 hrs a day, 7 days a week, 365 days a year. You get very little sleep and when you do fall asleep from sheer exhaustion, the pain will wake you up in an hour or two. As I write this blog it is 2:30 A.M. and I will probably go to sleep at 4:00-5:00 in the morning. I do this night after night and usually stop when the pain gets so bad I can no longer concentrate.

While it is true that the death certificate will never say that me or anyone in my situtation died of chronic pain, what usually happens is an organ failure, like a heart attack, stroke, etc. In the last 6 months, my blood pressure has gone from being perfect to extremely high. My doctor said it was from the stress of my body fighting pain. Thousands of people every year simply can fight no longer and take their own lives. My question is what is a person supposed to do when "they don't want to die", but they are in "to much pain to live" ?

So who is to blame for this "silent epidemic" as it is called? Truthfully their is plenty of blame to go around. There is a drug addiction problem in this country from people, most are not in pain, but usually take a number of different drugs at one time to get high, lack of education for not just the general public but doctors and the DEA also. For the present time in history, The GAO (govermental accounting office) issued a report that was highly critical of the DEA and their efforts to stem the flow of illegal narcotics. Then the Bush/Ashcroft/Gonzaliz so called "War on Drug dealers" which has turned out to be a "war on doctors and pain patients"

Of course the Senators and Congressmen who head up these powerful committees like nothing better than to get some cabinet head before them and chew their ass out to look good for the cameras. At the time Asa Hutchison was appointed DEA Czar and under pressure from Congress, started with a big media campaign, deliberately useing a new drug called Oxycontin that was and still is a drug approved by the FDA for the treatment of cancer and severe intractable chronic pain. So now instead of going after the bad guys, the drug smugglers, the short answer is they went after the soft targets. The poor chronic pain patient like myself who has no desire to take anything to get high. Instead we are the targets, and all we want is something to give us a few hours away from the painful, miserable, lonely existance we live. Something about this picture is terribly wrong. Its alright to let someone die just as long as you keep them from getting addicted.

The Toxic dump of the human body

2008-01-16T01:45:00.000-06:00

I will admit this picture is very disturbing, I just wish that more spine surgeons would listen to a man who is a board certified Neurosurgeon, spine surgeon and he is also certified in forensics medicine. For years he has been trying to get the attention of his collegues about the fragile central nervous system that he refers to as the "toxic dump" of the human body. The photo is the end stage of adhesive Arocnoditis. This is inside the spinal cord at the lumbar area and as you can see all of the nerves are just melted againest the spinal wall. The information below is copyrighted material taken from his site, with his permission. He is my hero and if you want to get an education on the spine please visit his site at http://www.burtonreport.com/INDEX.htm

"Despite society's frequently professed concern with the sanctity of, and need for. the preservation of human life this attitude is not always evident when reality sets in. The melamine poisoning of pets by tainted foodstuffs has created a remarkable whirlwind of world attention which has resulted in a swiftly successful scientific investigatory response to find the culprits and make sure that this does not happen again.
Unfortunately, poisoned humans have not been as lucky as their pets. The press has also recently brought to our attention the fact that a syrupy poison (diethylene glycol, the prime ingredient in antifreeze) has been substituted for more expensive and safe ingredient glycerol in oral medicines, such as cough syrup throughout the world for over a decade.The effect of the oral administration of diethylene glycol produces kidney failure, paralysis, and in most cases death (please note the similarity of symptoms with pet deaths due to melamine). Massive diethylene glycol poisonings have now been documented in Haiti, Bangladesh, Argentina, Nigeria, India, Panama, and China.In underdeveloped countries most people who die don't come to a medical facility or have toxicological autopsy studies. While some may be tempted to take some solace in being in a more advanced society, they shouldn't. Please put on your seatbelts at this point in time.You will no doubt be surprised to learn that the same poison, diethylene glycol, has been injected into the spine of unsuspecting Americans and their European cousins since the 1940s as a ingredient of oil myelograms and continues to be injected today as an ingredient of steroid suspensions frequently being used to treat back pain.When diethylene glycol gets into subarachnoid space it produces a chemical meningitis. This typically leads to adhesive arachnoiditis, which is severe scarring of the spinal cord and nerve roots. The most common symptom is constant and agonizing pain which is remarkably disabling. Many patients with adhesive arachnoiditis have taken their own lives as the only means of escaping their agony because adhesive arachnoiditis is rarely a direct cause of death. The common use of diethylene glycol as a ingredient of steroid suspensions being blindly injected into the spine is a real, present, and serious public heath problem in the United States and Europe today. Remarkably there is no hue and cry evident. The sufferers are not infrequently told that the problem is "in their heads" when a high resolution MRI could provide the specific diagnosis.Where are the medical and scientific professionals needed to investigate these tragedies? They are not in evidence. The only recourse a patient has today is in the medical-legal (if the statute of limitations hasn't run out) arena. The problem with this venue for society is that the settlements are not publicly propagated and the rest of the unsuspecting potential victims remain essentially uninformed. There just may be a slim chance, at this point in time, that the suffering of our pets from the melamine disaster might just possibly shift the spotlight a bit to the also not-wonderful-world of diethylene glycol. "

Copyrighted material of Dr. Charles V. Burton

http://www.burtonreport.com/InfSpine/AdhesArach&PoisonedMedicine.htm

What is your Doctor really writing in your health record?

2007-12-31T23:46:00.000-06:00

I often wonder how many Chronic Pain Patients lives have been destroyed because of a doctor putting, not what you are telling him, but what he perceives that you are saying, in your medical records. As a person who has lived in Chronic pain for 25 years, the last 5 years being absolute torture and has been down this road many times, I can tell you, it happens every day. It has happened to me and if you are living in Chronic Pain, I can just about promise you that it has happened to you. Do you have a copy of your medical records now. If not and especially if you have been to several different doctors seeking treatment as most of us have, I would strongly advise you to obtain and keep as many of your records as possible. You might want to prepare yourself to be shocked!!, as to what you may find in them.

While a doctor's office should be a haven for the sick, that is no longer the case, especially for the person suffering from Chronic Pain. They still take your money, as they always have, and they will prescribe you anti-inflamatory, antidepressants, etc, but the minute you mention something stronger, for example, some type of opioid, you have just entered into an aggressive, non trusting relationship with your doctor. All of a sudden, you have become a drug addict, just looking for drugs. Never mind that you are in so much pain that you don't feel that you can go on any longer. Opioid phobia has just kicked in with your doctor and you have committed the unpardonable sin of asking for the only thing that will control your pain, especially if it is at the levels of mine.

Its not enough that people like you and me have to go through this demeaning process with the medical profession trying to find someone with the compassion and education to help us, we usually end up with junk and outright lies placed in our medical records that will haunt us the rest of our lives. Maybe that is one of the reasons that approximately 17,000 people suffering from Chronic Pain kill themselves every year.

Even though this happens everyday all over America, and even though it is a violation of Federal laws, State laws, its unconstitutional and certainly a violation of "human rights" it keeps happening. Why? Because in 1999 some accountant in the GAO reported that opioids especially

Oxycontin was being prescribed to much. Now what in the hell some accountant knows about what is to much to prescribe a person in Chronic Pain, I will never understand , but the committees and sub-committees in congress started holding hearings and hence President Bush and John Ashcroft started the "War on Drugs" with the help of the DEA.

Of course the doctors are now afraid to prescribe any type opioid for fear of the DEA. So what is going to happen to people like you and me? Nothing until we all get together and start demanding our rights. So do you want to be part of the solution or spend the rest of your life in pain. Personally, I hate doing this blog, because its talking about a subject that is my life, and I sit up late at night to write it and I am in pain. I spend a big portition of my life writing congress, working with advocacy groups and writing this blog. You may not be in pain now, but all it takes is an auto accident, a fall and you will find yourself in my world. So step up. We need you!!

Are you "Chemically dependent or "Addicted"?

2007-12-16T02:21:00.000-06:00

Two of the most misunderstood terms in taking opiate or opiate-like drugs is Addiction vs. Chemical Dependency. Doctors, especially the News Media and even Chronic Pain patients themselves often misuse the terms. As a Chronic pain patient you have a duty to educate yourself on these things. Its not fair to you and it is certainly not fair to other Chronic Pain patients who are "fighting for our rights." So educate yourself!!

In writing this blog I want to be fair and present the other side. I just wish the "News Media" would do the same. If you take powerful Opiates or Opiods because you live with a level of Chronic Pain that is intolerable, sooner or later you will become chemically dependent on them. This is normal and if at some point you feel you no longer need them, slowely start reducing your dosage until you are completely off of the drug. I would suggest consulting with your Doctor and make sure he is aware of what you are doing. He will probably advise you at what rate you should reduce the medication. If you continue to take them after you no longer need to and make no effort to get off of the pain medications then you have become Addicted. At that point it is time to seek out an Addiction medicine specialist.

When opiates are prescribed by a physician for the treatment of pain and are taken in the prescribed dosage, they are safe and there is little chance of addiction. However, when opiates are abused and taken in excessive doses, addiction can result.

The brain itself produces endorphins that have an important role in the relief or modulation of pain. Sometimes, though, particularly when pain is severe, the brain does not produce enough endorphins to provide pain relief. Fortunately, opiates, such as morphine are very powerful pain relieving medications. When used properly under the care of a physician, opiates can relieve severe pain without causing addiction.

Feelings of pain are produced when specialized nerves are activated by trauma to some part of the body, either through injury or illness. These specialized nerves, which are located throughout the body, carry the pain message to the spinal cord. After reaching the spinal cord, the message is relayed to other neurons, some of which carry it to the brain. Opiates help to relieve pain by acting in both the spinal cord and brain. At the level of the spinal cord, opiates interfere with the transmission of the pain messages between neurons and therefore prevent them from reaching the brain. This blockade of pain messages protects a person from experiencing too much pain. This is known as analgesia.

Opiates also act in the brain to help relieve pain, but the way in which they accomplish this is different than in the spinal cord.

There are several areas in the brain that are involved in interpreting pain messages and in subjective responses to pain. These brain regions are what allow a person to know he or she is experiencing pain and that it is unpleasant. Opiates also act in these brain regions, but they don't block the pain messages themselves. Rather, they change the subjective experience of the pain. This is why a person receiving morphine for pain may say that they still feel the pain but that it doesn't bother them anymore.

Although endorphins are not always adequate to relieve pain, they are very important for survival. If an animal or person is injured and needs to escape a harmful situation, it would be difficult to do so while experiencing severe pain. However, endorphins that are released immediately following an injury can provide enough pain relief to allow escape from a harmful situation. Later, when it is safe, the endorphin levels decrease and intense pain may be felt. This also is important for survival. If the endorphins continued to blunt the pain, it would be easy to ignore an injury and then not seek medical care.

There are several types of opiate receptors, including the delta, mu, and kappa receptors. Each of these three receptors is involved in controlling different brain functions. For example, opiates and endorphins are able to block pain signals by binding to the mu receptor site. The powerful new technology of cloning has enabled scientists to copy the genes that make each of these receptors. This in turn is allowing researchers to conduct laboratory studies to better understand how opiates act in the brain and, more specifically, how opiates interact with each opiate receptor to produce their effects. I just hope it is soon, because personally I hate taking opiods or any medication for that matter. I, like most people in chronic pain just want a life.

Spine surgery and all of the new "devices"

2007-12-03T00:44:00.000-06:00

Every MONTH it seems like another new DEVICE OR PROCEDURE for Spine Surgery is approved. There are new and less invasive ways to fuse different levels of the spine, especially the lumbar and cervical discs. There are new tools, devices and procedures. The only problem is after all the surgery and the pain of fusions most patients are no better off and in most cases worse than before. How do I know? I have been there done that, I have researched it for 20 years and I receive comments and e-mails of people just like me, a living mass of pain.

Since I believe that man was created by a higher power, if he had meant for the spine to be rigid, he would have made it that way.

Now enter the Charite' artificial disc which was first developed in Berlin, Germany almost 20 years ago with dismal results. Depuy Industries owned by Johnson and Johnson purchased the company that owned the disc and of course got it pushed through the FDA with a short clinical trial, spine surgeons started implanting the device in the USA, in the L4-L5 area of back patients.
____________________________________________________________
"Seven months later, on May 13, 2005, the Street.com, reported that Dr Charles Rosen, an associate clinical professor of spine surgery at the University of California at Irvine, was calling for an immediate recall of the Charite, pointing out fundamental flaws in J&J's study design.

He told the Street that J&J compared the Charite to BAK cages in spinal fusions, a failed procedure that had not been performed in years. According to Dr Rosen, the comparison is "the worst possible operation to compare these things to."

J&J responded by saying the BAK was the standard treatment for degenerative disc disease at the time of the study.

According to the Street, Dr Rosen said J&J ignored the first patients who underwent the surgery, and that exclusion of such a significant portion of the sample size can seriously compromise the quality of statistical data.

Dr Rosen, who is also the founder of the UCI Spine Center, told the Orange County Register on April 12, 2006, that the Charite can cause more pain than it cures.

Forty-five year old, Dane Titsworth, from a hospital bed at UCI Medical Center, recovering from his fourth back surgery, told the Register, that the pain he experienced with the Charite he had implanted in May 2005, was like driving a big rig over your legs.

After the Charite surgery, Mr Titsworth said the pain became unbearable and cost him his job with State Farm Insurance, and nearly his marriage.

Dr Rosen fused the part of his spine where another surgeon had implanted the disc.

The Charite does not absorb shock like a healthy disc or mimic natural motion, Dr Rosen told USA Today on July 25, 2006, and a dislocation or fracture of the disc can also cause problems, he said.

In March 2006, Dr Rosen says, eight more patients like Mr Titsworth contacted him, who have more pain in their back with the Charite than without it.

In May 2006, Medicare decided to stop paying for the device in patients over 60, noting that the $30,000 to $50,000 surgery had not been sufficiently tested for long-term affects.

Blue Cross and Blue Shield also determined that more research was needed over a longer period of time, although insurance plans in each state determine coverage decisions individually, according to USA Today.

On October 20, 2005, the Bagolie Friedman law firm announced the formation of the "International Charite Artificial Disc Practice Group," based on a belief that numerous people in the US and abroad, "suffer Charite artificial disc failure," and that "Johnson and Johnson is responsible for manufacturing a medical device they knew or should have known was unreasonably dangerous in an attempt to capture some of the lucrative multi billion dollar back surgery market."

"We will be reviewing potential cases from the United States, Australia and Europe," said Mr Bagolie.

On June 5, 2006, the Street.com reported that Chicago-based attorney, Pete Flowers, has more than 200 clients who have complications from the Charite and who are seeking reparations from DePuy Spine.

Twenty-eight lawsuits have been filed, Mr Flowers told the Street, and he expects an additional 40 to 50 more to be filed this month. Dane Titsworth is a client of the firm.

Mr Flowers' clients claim the Charite is defective and that J&J improperly marketed the device and did not adequately warn of the disc's dangers.

"Most of these people are between 25 and 45 years old," he told the Street.com. "A lot of them have lost their jobs, their spouses, their families, their houses -- everything."

Since the disc was approved in the US, more than 5,000 people have received the implant, says DePuy Spine's Bill Christianson, vice president of regulatory affairs, according to USA Today on July 25, 2006."

Lawsuits Multiply

Veterinarians receive 3 times more training on pain than doctors and nurses

2007-11-18T21:34:00.000-06:00

This is a Canadian survey, but I believe it and it is probably worse in the USA. I also recently learned from a reliable survey that "old people" are the most undertreated for pain, followed by "children", then "women". "Men in the 30 to 45 year old range get the best pain treatment".

"Toronto - A recent survey for the Canadian Pain Society found students in veterinary medicine received an average of 98 hours on pain education, while medical students spent about 16 hours studying the subject.

Among the vets in training polled in the University of Toronto survey, the least amount of specific pain education received was 27 hours, whereas some medical and nursing students admitted they'd received no training on pain at all.

Nursing students spent an average of 31 hours on the subject of pain.

"All the veterinary colleges had way more hours than medicine, nursing, dentistry (and) pharmacy," said lead researcher of the study, Judy Watt-Watson.

She told 680News a stubborn stigma around chronic pain is playing a role. "There are chronic diseases related to pain that we can't take an X-ray of," she said.

One in four Canadians have suffered from chronic pain, according to researchers, who suggest training on the subject should be mandatory, not elective, in more medical schools across the country.

The society said this lack of training is leaving Canadian health care professions inadequately equipped to treat pain-related problems".

Source:Taiwo Lewis
.680 News

I receive a lot of e-mail from people all over the world, especially Canada, New Zealand, UK, and of course here in the USA and it really doesn't matter where, its the same horror stories and the same stigma no matter what the country. It is also a damn disgrace.

I will leave my first bit of education for the medical profession. Here is the stigma. "I am afraid you will become addicted". That statement in itself is wrong. You don't become addicted. Addiction is a behavioral problem, part of it even hereditary, where by people get medication for the high, the euphoric feeling and most have no chronic pain problems.

Chemical dependency is the correct word and is a natural occurrence when people have to take powerful medication for a pro-longed period of time. All you do is start slowly reducing the amount of medication you are taking until you are off of it. As a matter of fact "addiction" and "chemical dependency" take place in two totally different areas of the brain.

How do I know? Because I have gotten off of powerful opiods myself, seven or eight times. If I felt like I needed help getting off of them, I would tell my Doctor and ask him to help me. Why, because like the majority of people in chronic pain, I am not a damn drug addict.

How can you write a blog about Chronic Pain when you are in so much pain?

2007-11-09T00:15:00.000-06:00

I was recently asked this question by my Psychiatrist. "How can you write about chronic pain when you are in so much pain yourself". Honestly, it is getting harder to keep this blog updated. In the beginning it was my hope of getting the attention of the medical profession and the politicians. The most rewarding thing is to get comments and I also receive a lot of e-mail from people in pain. I am an advocate for chronic pain through such wonderful organizations as The American Pain Foundation. Chronic pain is one of the most stigmatized diseases in the world, just like Mental Illness used to be and still is to a degree, but not as bad as in the past.

It is only in the past decade that mental illness and psychiatrists have been getting the credit they deserve. In the past people suffering from any form of mental illness were characterized as "being crazy", "retarded", "messed up in the head, sickos". In 2006 an independent study showed that 11% of women and 5% of men take antidepressants. This situation is far from perfect but thanks to scientists and research, we are finally starting to understand the complexities of the human brain and the central nervous system.

Depression and anxiety problems or panic attacks which is a form of mental illness is a problem that Chronic Pain sufferers have to deal with also, especially if you have lived with chronic pain like me, for years. The Psychiatrist I mentioned above, I believe "with all my heart", was placed in my life by GOD. I have been seeing him for 16 years. I have been in Chronic Pain for 25 years. He has treated me for depression and panic attacks for 16 years. He has watched me go from a person with constant pain levels of 3-4 to constant 10 pain levels. He has also watched me battle with back surgeries that only made the pain worse. He has watched me battle the so-called pain management specialists who only want to do their spinal injections at $2500.00 per shot then send you back to your primary care Dr. for pain medication.

Out of anger at what I have been through and compassion for the way I was having to live he made this statement to me. He said, I really have no desire to get into pain management, but I am going to start treating you for your pain. He knows that the medication he prescribes is not sufficient for my pain level but it helps. That was 5 years ago and he still prescribes all of my medication. Not only is he a good psychiatrist but he is a very knowledgeable Medical Doctor. I have nothing but gratification for him and in my life he is one of about three in the medical profession I can say that about.

Chronic Pain is a disease and finally research is starting to reveal the complexities of it. It will not be in my life time that the "he is only wanting drugs because he is an addict" stigma will be lifted. In the meantime myself and about 60-70 million others will continue to "suffer in silence".

It makes sense to me.

2007-10-23T23:36:00.000-05:00

I had the good fortune to find a Neurosurgeon who has more certifications and belongs to more medical organizations than anyone I have come across. I just wish more surgeons would read his material and take some of the advice that Dr. Burton offers. He is certainly qualified to give it.

The following is from Dr. Charles V Burtons Burton Report

"It is remarkable, but true, that most people seem to spend a great deal more time in selecting downloads for their iPods than in selecting a spine surgeon. This is unfortunate because it is an important decision which often dictates a patient’s long-term quality of life.

Medicine is a profession, as many others, where prevailing therapeutic approaches may be, in fact outdated. There was a time, not too long ago when diseased hips, knees and ankles were routinely fused. Then the era of artificial joints changed this previously universal approach.

Spine surgery is still being held hostage to the "fusion" mind set. The spine is inherently flexible and forcing it to become rigid over many segments is the cause of significant stress related continuing problems. The result of this continues to be the inordinate production of "failed back surgery syndrome" patients.

It should seem readily evident that the architects who design skyscrapers include some flexibility in case of external stress such as hurricanes or earthquakes. If they do not do so these structures collapse. The same is true of the human lumbar spine and this is an important part of restorative spine surgery.

The need to reduce spine surgery failure has led to the advent of more physiologic, motion preserving, spine technologies of which artificial discs have probably received more than their fair share of M2H attention. It continues to be a sad, but true, story that some of the very best treatments often are associated with less commercial profit expectations and thus become medical "orphans" ignorant of William of Occams' Razor. Flexible stabilization systems and artificial disc nuclei exist today as well as restorative neuroradiology where polymers are injected.

It is essential for patients to become aware of all valuable options and search out those associated with less risk and higher efficacy. In spine surgery motion-preserving reconstructive (restorative) spine surgery represents one such important choice."

The information in quotes is the copyrighted material of Dr. Charles V. Burton and used with his permission. If you want to get a lot of information on the human spine and surgery, I suggest you visit his site below.
http://www.burtonreport.com/InfSpine/RestorativeSpineCareSurgical.htm

Undertreatment of Pain: A National Disgrace

2007-10-10T00:05:00.000-05:00

These are the words of Professor Ronald T Libby, in a commentary on pain that appeared in "The Pain Community" a monthly news letter published by The American Pain foundation this month, and he is exactly right.He reaffirmed what I have been saying, that most experts agree that right now there are approximately 76 million people struggling with Chronic Pain. Even though I have focused on the spine mostly, there are a host of other diseases and injuries like cancer, diabetes, rheumatoid arthritis, fibromyalgia, migraines, Hiv/Aids and other trauma from injuries. Even our veterans returning with all types of traumatic injuries are faced with not getting treatment for their injuries and that is a damn shame and a disgrace. If patriotic soldiers who have sacrificed themselves for the defense of their country do not receive adequate pain treatment for combat related injuries, what chance does the rest of the population have of getting pain relieving treatment. The reason for the failure to provide life giving pain relief to patients is the pervasive fear of prescribing opioids, narcotics. The societal enforcer of opioid-phobia is the DEA,(Drug enforcement agency). I really don't blame them entirely and this is why. Much of the problem lies with the powerful committees and sub-committees in Washington, D.C., playing to the cameras for their own selfish gain. Have you ever watched a cabinet member or a department head testifying before them on C-Span. The want more results on the drug trafficking trade so they go after the Doctors who are trying to help people like me and millions of others. Hey you political bastards, we are not Drug addicts. We are people suffering to the point of taking our own lives just to get away from the pain. This medication was approved by the FDA for the purpose of helping people like myself and Richard Paey live.

The biggest problem of all is the disinformation or misinformation by the damn News Media. They will talk about some pro-athelete overdosing on steriods for a month, or some celebrity getting picked up on a drug charge, but they will not devote one minute of time to some of the Chronic Pain Advocacy groups appearing on T.V. to tell the truth about the Chronic Pain undertreatment disgrace going on in this country at this very moment and it affects millions.

Some good news for a change!!

2007-09-28T00:30:00.000-05:00

Tonight I get to write about something good in my pain filled world for a change. Richard Paey who was a 47 year old Ivy-league lawyer with a wife, children and a good future was injured in an automobile accident a few years ago. He ended up with spinal cord injuries and from what I have read about him, he ended up with a botched surgery to make things even worse. After that a life much like my own, of agonizing pain.

Long story short, he was charged with possession of narcotics in Florida my home state by an overzealous prosecutor and sentenced to 25 years in prison, even though the man was in a wheel chair and in unbearable Chronic Pain. Many organizations including one that I am a member of The American Pain Foundation appealed to then Governor Jeb Bush to grant the man clemency which he refused.

Well GOOD NEWS!! Thanks to Governor Charlie Crist, Richard is out of prison wheel chair and all. The irony of it all is he was getting better treatment in prison,(implanted morphine pump) than before he went in. The picture I am using above is actually one of his cartoons he drew while in prison. Thank You, Governor Crist, for your compassion, and Good Luck to Richard. I hope you get the treatment you need.

The following is an update by The American Pain Foundation. who worked so hard to get him released.
____________________________________________________________________________
Richard Paey Granted Full-Pardon and Clemency

Richard Paey, the 48 year-old pain patient who was sentenced to 25 years in jail in Florida for "drug trafficking," was granted a full-pardon and clemency Thursday, September 20, by Florida Governor Charlie Crist and his Cabinet. The Governor's pardon and clemency order illustrates the kind of understanding and compassion that needs to be much more present in our medical system and in the ranks of law enforcement, regulatory, and prosecution systems.

The American Pain Foundation applauds Governor Crist’s sensible and compassionate act in righting a situation that should have never gotten so out of control. The American Pain Foundation also commends the tireless work of the Paey family in motivating and galvanizing the pain advocacy community to take a stand against the unfair treatment of people in pain. The emotional and financial toll inflicted on the Paey family by Florida law enforcement is simply unacceptable.

Richard's prosecution symbolizes the moral decay of our law enforcement and prosecutorial system that chose to see a person in severe chronic pain as a criminal and drug dealer rather than an individual in severe medical crisis seeking a solution for his pain. Law enforcement and prosecutors are not medical experts and should not be permitted to perpetuate a state of fear among people with legitimate pain needs and the medical community that serves them. Richard’s case is a shining example of what can happen when law enforcement and drug abusers dictate medical policy.

Treating desperate pain patients and doctors who treat them like common drug dealers is insane. There should never, ever, be another case like Richard Paey. The American Pain Foundation is committed to supporting the rights of people in pain through education and advocacy. Efforts to prevent the diversion and abuse of pain medication must be balanced so they do not interfere with appropriate and effective care for people with pain.

Source:http://www.painfoundation.org/

It would be nice to hear the TRUTH!!!

2007-09-14T23:38:00.000-05:00

I walked out of a spine surgeon's office about nine months ago not believing what he had just told me. I had pretty much made up my mind to have another surgery, this time a fusion of L4-L5 and L5-S1 discs. As I started to leave I ask him if he was sure that this would help me. He replied and I quote "Sure, you will feel so good that you will come back for another one". I couldn't believe what he had just said.
I looked at him and replied "in your dreams". This doctor is supposed to be one of the best minimal invasive surgeons in the country but I have done to many years of research on spine surgery to believe a statement like that. It seemed totally out of character for a professional and I never went back to him.

What ever happened to True Informed Consent. I will tell you where it is, it has fallen by the wayside by many Spine Surgeons. To be fair and thanks to the internet not all surgeons are this way. There are many good and ethical surgeons that are up-in-arms about things such as this. That is why a group of surgeons have started theAssociation for Ethics in Spine Surgery.

"In a study published in WebMD done by a group of Surgeons at Switzerland's University of Lausanne Medical Centre, Dr. Bertrand Graz and his colleagues state that "Doctors overly Optimistic about back surgery". In their study a total of 197 patients were included for back surgery. Prior to operating, their surgeons were asked to predict how much surgery would improve their patients quality of life. The surgeons predicted that 79% of patients would have "a great deal of improvement" and 20% would have "moderate improvement". A year later when questioned, 56% of the patients reported no significant improvement in their
health. The article went on to say that this was not the first study that surgery is not the cure-all for low back pain that many patients think it is, or the first to suggest that surgeons do a poor job of predicting which patients will benefit the most from back surgery."

My own personal feelings after having three surgeries, I don't think there are any cures for spinal problems at the present time. Maybe someday there will be. In the mean time the pain goes on.

A very bad Day!!

2007-09-07T01:13:00.000-05:00

I am sure that most people who live with the levels of Chronic Pain that I do will tell you that one of the worst things about it is the Loneliness. It eats you alive because all of a sudden people don't have time for you and Yes "THAT INCLUDES YOUR OWN FAMILY". Even writing about pain when I am in so much pain at times is almost unbearable

Most of the time I do a pretty good job of keeping things in perspective but today wasn't one of them. My ex-wife, the mother of my two sons is dying of lung Cancer. My youngest son has always run from reality when it comes to things like that. He called me last night to tell me that she was back in the hospital and then got upset with me because he said he didn't like the way I reacted. When I asked him to explain what he meant he couldn't.

I had called him two or three times previous this week and of course I got the same answer that I have gotten for years. Dad, I am busy right now. I will call you right back. He didn't of course but I have grown use to it because he never does. Neither of my children call me any more to ask me how I am doing, if they can do anything for me, however they will call if they need something from me. Strange? Not really.

People can relate to cancer, heart problems, strokes, lung problems and I could go on. Just the word Pain, or Chronic Pain just doesn't seem to register in the human mind as being anything serious. Hell, what can you expect when most of the medical profession feels the same.

Sometimes I want to just stop writing even stop trying to even think about it. It is hard to believe with so many millions of people in this country in pain that it continues to be ignored especially by the state and federal law makers. I thought in this country you were presumed innocent until proven guilty, yet the majority of people that have had surgery after after surgery and still live in unbearable pain are stigmatized as just drug addicts. This is absolutely pathetic. Even many of the fighting men and women who have sustained severe damage are running into the same problems. This my friends is a disgraceful shame.

Why do I even bother writing a blog about pain?

2007-08-25T23:45:00.000-05:00

Photo of me 8 months before my injury. The real damage was done by the surgical procedure that followed.
I have asked myself that question a lot lately. After all, no one wants to read about pain. Most people have the perception that bad things only happen to other people. Actually I guess I felt that way myself at one time. Its just human nature to not want to talk about painful or unpleasant things. Like so many other people who live in Chronic Pain, I ask myself more and more every day, Why even GO ON. Why not just put a stop to all of the pain, the sleepless nights.

Even taking pain medication gets very old and I will never be able to understand why anyone would want to take strong opiates that don't need them, because they all have side effects. Personally I think that people who take opioids just for the feeling are unhappy with themselves, with life. The news media makes it harder for people like me to get help because of their biased reporting. I'm not that way, I get high off life, and this beautiful country that GOD has blessed me with. That is one of the reasons that I cannot bring myself to take my own life. I am a man of God and I don't believe that is my call to make.

Someone once ask Rev. Billy Graham if there was a God, why did he allow little children to suffer and die young? Actually it was on the "Larry King Live Show". Rev. Graham looked at Larry King and replied I DON'T KNOW. He went on to say, "If we knew all of the mysteries of God then there would be no reason to worship him. He is absolutely right.

Do I believe there is a God? With every fiber in my body. Why hasn't he healed me? I don't know because I have prayed for him to do that. The best thing I have going for me is when I walk outside about 4:00 A.M. in the morning, which is about the time I go to sleep and look up at the beautiful universe I know his "Holy Spirit" is with me. That and my family is what has kept me going, along with the hope that if I write long enough, the medical profession and the politicians will do something to help me and the 60 million people in this country of all age groups who suffer as I do. It is time for both of them to put an end to the unfair stigmatization of Chronic Pain sufferers being drug addicts. It is a lie and I challenge any of them to show proof of it. They want do that for one reason. THEY CAN'T.

But it is FDA approved!!

2007-08-09T02:08:00.000-05:00

SO WHAT!! Who do you think sits on the advisory boards that approve drugs, artificial discs, or any of the other new appliances and gadgets that are approved. A five person panel of Physicians usually associated with the field that the new product will be used in. The politics and lobbying there is just as great as it is anywhere else in Washington, D.C. Am I saying that everything that the FDA passes is bad. Certainly Not! I am saying that more and more The FDA is influenced by politics and lobbying of big drug and device companies.

The Charite disc is one very recent example. This disc was designed at Charite, hospital in Berlin, Germany almost 20 years ago and the results have been dismal at best. I have personally followed it for 15 years myself. It was purchased by a company owned by Johnson and Johnson and over the objections of several high profile "Ethical Spine Surgeons", it made it through the FDA pretty fast and is now being implanted in to the Lumbar Discs of people like me.

Dr. Charles Rosen and several other great Spine surgeons have started a new Association, Association For Ethics in Spine Surgery. Dr Rosen is one of The Surgeons who has called for the FDA to remove The Charite disc from the market. You can read about his remarks at Whats Wrong with The Charite Disc

There are many great professional surgeons in this country who practice by the oath they took, on the other hand "THERE ARE MANY SURGEONS WHO ARE GREEDY AND DO NOT HAVE THE PATIENTS HEALTH FIRST, WHICH IS WHERE IT SHOULD BE". When I had this new FDA approved procedure that I have talked so much about the Chemopapain injection, the Doctor that performed the procedure on me never mentioned the down side or the possible things that could happen. All he talked about was what a great medical break through it was and how much better I was going to feel. I WISH!!

For a look at one of the Nations Top Surgeons who has been there and done that, read what Dr. Charles V. Burtons views are on this Subject and I will take you to his site so you can read his article complete.

----------------------------------- Dr. Charles V. Burton ------------------------

"During the 1970's the Editor was a representative of organized neurosurgery in the drug and device areas. This involved the writing of standards and it wasn't unusual for standards groups to create rules which "were smarter than they were". Being in Washington at the genesis of medical device legislation the editor experienced firsthand the sport of "character assassination" so well described by Vincent Foster prior to his suicide. In providing testimony to the Congress of the United States government the editor observed a prominent consumer advocate providing false testimony. When this was later brought to his attention in private he acknowledged that he had lied but retorted: "but I made the point didn't I?". This also was quite an eye opener regarding the true nature of the "playing field".

Other "eye openers" have been the government's political agendas. The editor, as a Food and Drug Administration medical device panel chairman observed the process by which knowledgeable consultants were removed from serving on FDA panels because of potential or real conflicts of interest. Rather than protect the public interest by the application of "sunshine" principles, these experts were replaced by politically "correct" minorities for the purpose of "balance". Unfortunately, these choices reflected an expediency dictated by the wrong motives and thus deprived the public of important guidance in the areas under consideration. Effective means of keeping experts as consultants while at the same time negating their potential conflicts of interest were not utilized.

As a member and chairman of local and national ethics committees the Editor became aware that it was not a popular deed to bring up discussions as to what was in the patient's best interest rather than those of the physician or hospital. Minnesota physicians are well-known for placing their patients best interests at the forefront in the physician-patient relationship. The Burton Experience has been that this ethic deteriorates rapidly as the issues go beyond those of immediate patient needs.

Few medical professionals have evidenced to the Editor an awareness of what ethics are or the reasons as to why they are important in health care. Those who have appeared to understand ethics frequently suffer from memory lapses when confronted by self-interest. Medical ethics has been, and continues to be, an afterthought in the medical community. It needs to be reinvented."
The Burton Experience
This is copyrighted material and reprinted with the permission of Dr Charles V. Burton.

What most Americans don't know about medicine.

2007-07-30T23:40:00.000-05:00

When was the last time you as a spine patient ever talked to your Surgeon about surgery and he mentioned things like the dangers of contrast materials, or the danger of chemicals in steriod injections, of the dangers of injecting ANYTHING close to your spinal cord. When has one ever mentioned the word Adhesive Arachnodities. They haven't because they don't talk about it. As I mentioned earlier, my own primary care physician had never heard of the chymopapain injection, a procedure used from its approval in 1983 until about 1990. This kind of thing falls under INFORMED CONSENT. What kind of informed consent do you get before surgery? I will tell you because I know. You get that yellow form shoved in front of you to sign just before you go into surgery. ITS YOUR BODY AND YOU ARE THE ONE THAT HAS TO LIVE WITH THE CONSECQUENCES. You also have a right to know. Below is an excerpt taken from Dr. Charles V. Burtons, Burton Reports. Read it then, I will take you to his site where you can see word for word what I am talking about.

"Despite society's frequently professed concern with the sanctity of, and need for. the preservation of human life this attitude is not always evident when reality sets in. The melamine poisoning of pets by tainted foodstuffs has created a remarkable whirlwind of world attention which has resulted in a swiftly successful scientific investigatory response to find the culprits and make sure that this does not happen again.
Unfortunately, poisoned humans have not been as lucky as their pets. The press has also recently brought to our attention the fact that a syrupy poison (diethylene glycol, the prime ingredient in antifreeze) has been substituted for more expensive and safe ingredient glycerol in oral medicines, such as cough syrup throughout the world for over a decade.

The effect of the oral administration of diethylene glycol produces kidney failure, paralysis, and in most cases death (please note the similarity of symptoms with pet deaths due to melamine). Massive diethylene glycol poisonings have now been documented in Haiti, Bangladesh, Argentina, Nigeria, India, Panama, and China.

In underdeveloped countries most people who die don't come to a medical facility or have toxicological autopsy studies. While some may be tempted to take some solace in being in a more advanced society, they shouldn't. Please put on your seatbelts at this point in time.

You will no doubt be surprised to learn that the same poison, diethylene glycol, has been injected into the spine of unsuspecting Americans and their European cousins since the 1940s as a ingredient of oil myelograms and continues to be injected today as an ingredient of steroid suspensions frequently being used to treat back pain.

When diethylene glycol gets into subarachnoid space it produces a chemical meningitis. This typically leads to adhesive arachnoiditis, which is severe scarring of the spinal cord and nerve roots. The most common symptom is constant and agonizing pain which is remarkably disabling. Many patients with adhesive arachnoiditis have taken their own lives as the only means of escaping their agony because adhesive arachnoiditis is rarely a direct cause of death.

The common use of diethylene glycol as a ingredient of steroid suspensions being blindly injected into the spine is a real, present, and serious public heath problem in the United States and Europe today. Remarkably there is no hue and cry evident. The sufferers are not infrequently told that the problem is "in their heads" when a high resolution MRI could provide the specific diagnosis.

Where are the medical and scientific professionals needed to investigate these tragedies? They are not in evidence. The only recourse a patient has today is in the medical-legal (if the statute of limitations hasn't run out) arena. The problem with this venue for society is that the settlements are not publicly propagated and the rest of the unsuspecting potential victims remain essentially uninformed. There just may be a slim chance, at this point in time, that the suffering of our pets from the melamine disaster might just possibly shift the spotlight a bit to the also not-wonderful-world of diethylene glycol."
The information in quotes is copyrighted and reproduced with the permission of Dr. Charles V. Burton of
Burton Reports

Maybe through the concern for our pets the Medical Profession will start acknowledging the truth about their masters.

We the People or at least thats how it is supposed to be.

2007-07-23T01:31:00.000-05:00

I have said this many times and I will keep on saying it. No person in America, the most advanced country on the face of the earth should have to suffer from the levels of pain that myself and millions suffer but we do!!! Aren't we supposed to be a civilized, and compassionate society? Very Simple. Big Business in the form of the medical profession and politicians who once elected don't have time for one person like me. There are a few who care. Congressman Mike Rogers has been trying to get the bill below through Congress since 2003. I am in to much pain to write much tonight, but I am begging you to go to the link at the end of this post and call, write, or e-mail your political leaders and ask them to support this bill.

National Pain Care Policy Act Introduced in the U.S. House of Representatives!

Millions of Americans who suffer from pain could soon find relief thanks to legislation introduced in the U.S. House of Representatives today. Representatives Lois Capps (D-CA) and Mike Rogers (R-MI) introduced the National Pain Care Policy Act of 2007, which would improve pain care research, education, training, and access. The pain community has been instrumental in joining forces to support and advance this important legislation.

Key components of the bill include:

The authorization of an Institute of Medicine Conference on Pain Care;
Permanent authorization of the trans-institute Pain Consortium at the National Institutes of Health;
The creation of a grant program to improve health professionals’ understanding and ability to assess and appropriately treat pain; and
The creation of a national public awareness campaign about pain management, conducted by the Department of Health and Human Services, with particular attention to improving access to appropriate pain treatment among underserved populations.

Please click on The American Pain Foundation link below for more information.

The American Pain foundation

Have you had an Epidural Shot lately?

2007-07-10T00:38:00.000-05:00

I have had to many. I only wish that I had the knowledge 25 years ago that I have today about some of the invasive procedures that I have had performed on My lumbar discs. It is so frustrating when your primary care doctor has never heard of some of them, for example the Chymopapain injection. My back surgeon want even talk about Adhesive Arachnoditis which is probably what I have. Is it lack of knowledge or lack of interest. I don't know, but one Doctor that is considered to be one of the countries formost experts on the subject can explain it. I owe a debt of gratitude to Dr. Charles V Burton and the information he presents on his site. I know of no one more qualified than him on the human spine. If you have severe back problems like myself, I urge you to spend some time there if you really want an education. Any Doctor who thinks it doesn't exist might try telling this lady that it doesn't.

"Subject: Dr. Burton, another severe Adhesive Arachnoiditis sufferer!!
Date: Monday, July 31, 2000 6:15PM

Dear Dr. Burton, (sorry this is long!!)

My name is [xxxxxx] and I am a Registered Nurse. I have been a
nurse for 27 years. I was diagnosed with severe arachnoiditis in 1996. I am a very clear cut case of chemically induced adhesive arachnoiditis, as I have never had any spinal surgery of any kind, nor any other spinal problems, except for the complaint of backpain radiating down my left hip and leg in 1990. It was then that I was subjected to a myelogram/CT using the Iohexol contrast media. They found a bulging disc in the L4/L5 area and "prominent Tarlov Cysts bilaterally". I was thus sent to a pain MD and he proceeded to inject me with Depo-Medrol epidurally x3, each 2 weeks apart. (These were done
"blind" without the use of fluoroscopy[sic]).

I was never told before the myelogram, nor the epidural steroid injections, that one risk was arachnoiditis. (no surprise here!) It is interesting to note that after each steroid injection, I had not less pain, but increased pain. On the second injection, he had to reinject me as he had trouble getting the LP done and had to change levels and reinject. After that episode, I spiked a temp of 103 degrees and had excruciating pain. I called the pain clinic and they seemed
very unconcerned and prescribed me Talwin for the pain, which helped little except make me feel like I was hallucinating. So, I only took one dose. They prescribed me Percocet a few times after that, then sent me on my way. By 1996, I was in such severe, constant pain, that I could not stand it anymore. had been having pain since 1990, but this was at the point where I cried every night.

I was still working as a RN 12 hour shifts in a CCU! I went to a
neurosurgeon, on my own, not bothering to go to my family practice MD, as I felt I must have a spinal problem. (He was not happy with me that I side stepped him and went straight to a neurosurgeon, at the time). He ordered a routine spinal x-ray and MRI without contrast. That showed mild-moderate degenerative disc disease and nothing else. (or so he said). The pain continued. He had prescribed Ultram, which did not help the pain. He then ordered a Myelogram/CT and I was then subjected to another insult to my spine. We did not know, at this point yet, that I had Arachnoiditis. They had difficulty doing the LP for the Myelogram and had to do it a level either above or below the initial stick. It caused me to literally scream in pain. (I have a high pain tolerance too). (or did!!) They did the CT and then apparently[sic], saw something, for they brought me back into the CT room and repeated it, a few levels above the initial CT. After the myelogram and CT this time, they had me get up and sit in a waiting room for 2 hours. I walked from the myelogram table to the CT table and then to the waiting room. Finally, after the second insert into the CT tube, I was sent home.

A couple of days later, the nurse called from the neurosurgeon's office and said the MD now wanted me to have a MRI with contrast. (remember, the first time, he ordered the MRI, but without contrast). A few days later he called me himself on the phone and gave me the diagnosis. He never even saw me in his office!!! He told me and I quote," I'm sorry, but you have arachnoiditis. I was really worried because, at first, I thought you had spinal tumors, but you have
arachnoiditis and there is no cure. I'm sorry but I cannot help you, Goodbye, click!!!! There went the phone, and he never even allowed me to ask what the heck arachnoiditis was!!! I was literally in shock. I had never heard of this disease, even though I am a RN, and now I know why. I researched on my computer and found all the arachnoiditis support groups and began to learn, but I had NO IDEA what I was in for, but no idea!!!!

The last 3 years have been a horror story, bouncing from one pain Dr. to another, to a second neurosurgeon, the MS pump in and out after 1 year( that is another nightmare story in itself), trial of you name it, and the story is the same...you are dumped after so long and the MD.'s refuse to treat you although they all knew I had arachnoiditis. Ther[sic] attitude was blase' to say the least, and nasty, at the worst. I finally attempted suicide in April of this year by taking 80 tablets of clonazapine.(sp?). I was at the point where I was so depressed,
isolated, in such excruciating pain, with bladder and bowel and GI
complications, financial troubles, no family help, and barely staying off the street due to not enough money on SSD and LTD.(Long term disability). I was rushed to the hospital, had a NG tube placed and the charcoal tx. and was placed in a psych unit for 25 days. I do not have any hx. of mental problems in the past and I suffered for years before I finally gave up from
frustration and pain.

The psychiatrist I saw at the hospital told me that the pain MD.s were in the dark ages and my only problem was arachnoiditis and money problems and that he would treat me for life. (unfortunately, he is not a young MD). He prescribed me the Duragesic Transdermal Patch 50mcg. and I was literally amazed at how well it worked. I wondered why no MD in the past had ever tried me on this!!!! I am still having all the finacial[sic] problems to the point where my belongings are in storage and I am staying with a friend because I cannot afford to pay bills with so little income and no prescription coverage. Since, I have LTD, I do not qualify for any Medicaid or state programs etc. and so I have only Medicare which, as you know, has no prescription coverage! I wanted to tell you my story and offer you any help you might want from those of us with this horrific disease. I want the word to get out and I want to help others, although I can barely help myself at
this point, I feel as a RN, I must get the word out about all this."

The information in quotes is the copyrighted property of Dr. Charles Burton and reprinted with his permission. http://www.burtonreport.com/InfSpine/AdhesArachE-Mail.htm

My attitude in life has always been, that no matter how much you think you know your mind should always be open to learning more, especially from a professional. I just wish that more surgeons would be open to the vast amounts of information available.

Do the research before you agree to major surgery!!

2007-07-03T00:38:00.000-05:00

You no longer have to be in the dark about your condition or health problem. In todays doctor-patient relationship, you are lucky to get 20 minutes before a procedure. Remember, these surgeons perform many procedures sometimes even in one day. You are the person who has to live with the results of this procedure. You no longer have to rely on what your Doctor or his Nurse tells you, at least you don't if you have basic skills with a computer and an internet connection.

I admit that I have more than basic skills with a computer but you can do it. You can find all of the information that you will ever need and usually you can find a forum or news group filled with people who have the same health problems as you. Most of them are more than willing to exchange stories with you, give you tips and in many cases refer you to other websites for additional information on your topic. Research can be a gratifying and exciting way to not only educate yourself on your condition but make friends from all over the world.

After my last back surgery which was actually 1991, my life was a living Hell. It was a year before I could even stand up straight. I vowed that I would learn everything I could about the human body, especially the Spine.. I did just that and I am still learning.

I have no desire to be a surgeon and I am not one. I am one of the most informed patients that a surgeon will ever talk to and most of them don't like it. I could care less because I have already been down this road. You have surgery, you get a couple of follow up appointments and then you are on your own. Hopefully the surgery helped. If it does great, if it doesn't you are own your own and its your problem. Sadly few spine surgeons have the patients best interests at heart, especially today.

The REAL TRUTH IS THERE IS NO CURE FOR PROBLEMS IN THE HUMAN SPINE!!!

Once again, do your research. You can find it on the internet and if you can't leave me a comment and I will research it for you.

We are nothing but a file!!

2007-06-22T01:19:00.000-05:00

To continue my story from the last post, When my wife got me home, I was in horrible pain. After about 2 weeks of this my wife requested a meeting with the Doctor who performed the surgery. At first he told my wife that he just didn't believe that I was in that kind of pain. Finally, he decided that I should come back to the hospital for another CT scan. He said, after the test, that it looked liked a small piece of bone that had come loose during the surgery. So Guess what!! I had the same surgery all over again. I just thought I was in pain before. After about 2 weeks he refused to even take our calls. He did refer me to another surgeon, this time an orthopedic surgeon. At the time there was a turf battle going on between neurosurgeons and orthopedic surgeons about which speciality should be operating on the spine. That is one of, if not the main reason that the Spine Surgery Board was created. Today both groups are board certified spine surgeons.

The orthopedic surgeon looked at the test and kinda shook his head, looked a me and said, I don't understand why he didn't do a nerve decompression and then a fusion. Another opinion!!

What neither of them knew was that neither procedure would have worked because I had spinal cord nerve damage from the chymopapain injections and the other test they did. Hey believe it or not, at the time they were using contrast materials for mylograms that had "glycol ethylene" in them. In case you don't know what that is, it is the active ingrediant used in car antifreeze. So my life of unbearable pain would continue because that was 15 years ago. I am sitting here 25 years later wandering if I can even sit at this computer long enough to complete this post. However, that is not the worst part. There are several million people out there tonight living the same lives that I am living.

My continuing Saga with Chronic Pain

2007-06-11T02:12:00.000-05:00

The Chymopapain injection, my first medical procedure as explained in earlier posts, sounded simple enough as explained to me. The problem was that it was largely unproven and the sugeron who performed the procedure had just completed the one day training course in Canada. I, of course didn't know this until later. Photos that my wife took of the procedure did not match up with the explanation that the operation physician gave me before the operation. Of course, it wasn't until several years later that I learned the real truth about Chymopapain. Go to my entry of "The tale of the floppy eared bunney" where noted Neurosurgeon Dr. Charles V. Burton's article explains.

When I woke up from the procedure I was in unbearable severe pain and that pain would continue for months, then the months turned into years. After about 5 years I started going to different Doctors looking for some other treatment or surgery that might help the pain. I got a variety of opinions, depending on whether the surgeon was a neurosurgeon or orthopedic surgeon. Finally in 1991 I saw a neurosurgeon who said that I needed to have a laminectomy. At the time I had done very little research on the spine. Today there is no excuse for a patient not getting all of the information they need with the rapid growth of the internet. I don't care what your condition is, there is so much credible information out there, so DO YOUR RESEARCH!!

One of the things I learned early on, is that many Doctors understandably, do not want to clean up someone elses "mess". When I look back on the reason that I chose this particular Doctor, I think it was his personality. He assured me that a laminectomy would take care of my problems. At that time I didn't know exactly what a laminectomy was except what he told me. Armed with the information that I have today, I would have known that at the least it would not help my medical problems and the worst it would make them worse. Sure enough, it made them worse. I woke up from the surgery in absolute agony. Even though I kept asking for my doctor he, did not come by my room at all the first day. Finally on the second day my wife was very upset because my pain level was so high and the nurses would not increase my pain medication. She called the office of the doctor who had performed the surgery and was told he had left the day after my surgery for a 2 week vacation. I was furious and the next day I asked to be discharged from the hospital. The next year of my life I lived in pure hell. Had it not have been for a primary care physican I do not think I would have made it through that year. True story FOLKS!! Unfortunately, this wasn't the end of it.

Some Doctors have a valid point about prescribing opiods

2007-06-05T01:07:00.000-05:00

I was reading an article in the Wall Street Journal earlier tonight about a Doctor who seemed sincere in his efforts to strike a balance between prescribing powerful drug medications that so many people desperately need to live in order to have a decent life. For Doctors like this one I can understand how frustrating it can be for the one's who want to sincerely help people like myself and at the same time not jepordize their careers. He is right in saying there is a balance that people like him have to take when prescribing opiods.

As an example he talked about a patient that called his office multiple times on a weekend and even resorting to calling his home and then trying to circumvent him to get the Doctor on call that weekend. This is an example of a patient who may or may not be faking their problems just to get access to highly addictive drugs. The thing that I really admired about this Dr. is he stated; this particular patient would have to seek treatment with an addiction medicine specialist before he would try to help them anymore. He also had several things to say about the pain management specialists who only want to do expensive steriod shots and physical thearpy, then send the patients back to primary care Doctors like him once they had used up all of the patients insurance that they would pay. These Doctors have a legitiate right to be angry. I have heard this story more than once from primary care Doctors. I understand their frusteration.

The thing that I admired most about this Doctor was that he wasn't giving up on his patients that he knew desperately needed these pain medications or opiods to even exist. In cases like this PATIENTS have a responsibility to not use their Doctor and appreciate the fact that he is trying to help them.

I have been going to the same Doctor for 15 years. I do not miss an appointment. I have been taking the same amount of medication for the past 5 years. I have not ask for increases in my medication. I have never lost a prescription and I corporate with him in any way that he asks. That is , I feel, my duty to him and it is the duty of everyone in chronic pain. DO NOT ABUSE YOUR DOCTORS TRUST!!!

What you, the Chronic Pain sufferer can do.

2007-05-30T00:00:00.000-05:00

If you are suffering from Chronic Pain like I am PLEASE don't just sit there doing nothing. As for as I am concerned a medical doctor that lets a patient walk out of their office, knowing that individual is suffering at a level of pain they can not endure is violating the very oath they took to become a Doctor in the first place. The statistics are out there. You are paying that person to help you, not just to take your money. As for as I am concerned, the millions of people in this country alone that have to suffer from Chronic Pain are having their "Human Rights" violated every day, by the medical profession that refuses to treat them, by the news media that stigmatizes us and by the politicans who are more interested in catering to the lobbyists than protecting us and making laws to make sure we get the proper treatment.

Even Veterans from Viet Nam all the way through the Veterans of Iraq and other recent conflicts are having the same problems finding treatment and that is a damn shame. That is why it is so important for everyone to get involved in some type of
advocacy group. Look on the left side of my blog at my "favorite sites", pick one and join. Do like I am doing. Take advantage of all of the tools the internet has to offer to have your voice heard. That is the only we will ever get our voice heard.
Call your Congressman and Senators, engage in letter writing to them. I can promise you that the politicans are afraid of the "Blogs", because that is one of the best tools we have to get our voices heard.

This research may hold promise for Chronic Pain

2007-05-23T23:52:00.000-05:00

I wanted to share this article with all of the Chronic Pain sufferers. I have grown very skeptical over the years, which is not my nature. I am just tired of hurting.
Even though this kind of research probably want help me, it may hold promise for others who are younger than me. So I wanted to share it with you.

"Whether they're fighting postoperative soreness or relieving chronic discomfort from conditions such as cancer, morphine and other opioids are powerful weapons against pain. Now, in research published online in Nature Neuroscience, Brown University scientists give one reason why these painkillers work so well.

The secret: They act on a special form of N-type calcium channel, the cellular gatekeepers that help control pain messages passed between nerve cells. By blocking these channels, pain signals are inhibited. These findings not only shed important light on how the body controls pain, they could be a boon to drug development.

"We've known that drugs such as morphine are highly effective at blocking calcium channels, but we've never known precisely why - until now," said Brown neuroscientist Diane Lipscombe, who led the research. "With this new understanding of how opioids work on calcium channels, drug companies could develop effective new painkillers."

Lipscombe, a professor in the Department of Neuroscience, is an expert in N-type calcium channels, critical players in the pain pathway. At the synapse - the point of connection between nerve cells - N-type channels control the release of neurotransmitters. These chemicals carry messages between nerve cells - messages that include sensations of pain. So if you block N-type channels, you can block pain.

But all of these channels shouldn't be closed, Lipscombe explained. That's because some pain signals - "That stove is hot!" - are needed to survive. "You don't want to shut off all pain signals," she said. "You just want to dampen some of them down."

In 2004, Lipscombe and her colleagues discovered a unique form of the N-type channel in nociceptors, neurons that carry pain signals to the spinal cord. These are the channels that opioids act on. But what makes the channels in nociceptors so special?

In their new work, Lipscombe and her team uncover the answer. All N-type channels are made up of a string of about 2,400 amino acids. In nociceptor N-type channels, that string differs by a mere 14 amino acids, Lipscombe and her team learned. This small difference in molecular make-up makes these channels much more sensitive to the pain-blocking action of opioids.

"In nociceptor N-type channels, you get double-barreled inhibitory action," she explained."

###

Jesica Raingo, a Brown postdoctoral research fellow, is lead author of the Nature Neuroscience article. Andrew Castiglioni, a former Brown graduate student, participated in the research.

The National Institute of Neurological Disorders and Stroke funded the work.

Contact: Wendy Lawton
Brown University

The main problem with getting proper treatment for Chronic pain is here.

2007-05-16T22:41:00.000-05:00

How many times have we heard politicians on the campaign trail making all of their false promises to get elected. Try to get one to talk to you after they get elected and see what happens. Even though my core values are conservative and I have voted Republican all of my life, I will never do it again. I am about as sick of one side as I am the other. As soon as they get elected they immediately start running for re-election. Then they are interested primarily in the big money guys. The big lobbyists. Of course the Medical Industry is supported by the Republicans and the Trial Lawyers by the Democrats.

Then people like you and me can stand in line. I have personally contacted both of my U.S. Senators, my Representatives both State and Federal trying to arrange a meeting on the current undertreatment of Chronic Pain in this country. Usually all I get is an autoresponder generated generic letter, or a news letter. What have they done since the new Congress? Nothing except argue and bicker about Attorneys Generals. To his credit Rep. Mike Rogers of Michigan and the late Charlie Norwood has had a bill in the house, H.R. 1020 since 2003, called the National Pain Care Policy and so far it hasn't gotten out of committee. Why? They don't give a damn. I have vowed that I will never stop my fight for better treatment of the 70 million people suffering from pain if I have to go and sit on the Capitol steps.

We have thousands of brave men and women who have been mangeled by an unnecessary war and even they aren't getting the proper treatment and that is a shame. If you don't believe me just go to The american Pain Foundation and see for yourself. And if that is not enough, we have a generation of people (the Baby Boomers) turning 60 years old at the rate of almost 8,000 per day. What is congress doing about it? Nothing but making deals and making sure they get their Pork Projects.

President Bush decides we need to have a war on drugs, but despite their best efforts the DEA hasn't been able to steem the flow of illegal drugs or narcotics so when the DEA, which was run by Asa Hutchinson gets called on the carpet by some congressional committee, poseing for a C-span Camera what happens? The DEA starts going after the few Physicians who are trying to help people like me make it through the day.

If a person has the diagnosis to back it up and a Doctor writes a prescription for the medication it is not a Narcotic. It is a Schedule II controlled substance approved by the FDA for the treatment of Chronic pain. So what in the hell is the DEA doing in the Medical business. You would think they would have their hands full going after the drug smugglers who are still bringing record amounts of illegal drugs into this country for our Children to get their hands on. I have never taken an illegal drug in my life nor do I believe that people who are truly in Chronic Pain do either.

The "News Media" plays a large role in the undertreatment of Chronic Pain

2007-05-11T02:41:00.000-05:00

Whether it is bias or just chasing and over sensationalizing a story, the "news media" plays a very large role in the undertreatment and stigmatizing of chronic pain. Whether it is some celebrity, someone in sports, etc. that is all you see and hear. For example All we have heard for weeks is Anna Nichole Smith and Methadone, Britney Spears, or some other "quote" famous person going into rehab. for some type of drug abuse treatment. You can almost change channels on the big three news networks and never skip a word. If the DEA has a drug bust, you hear that over and over.

I have personally sent e-mails to John Gibson and Bill O'Rielly of Fox news and ask them to do a piece on the undertreatment of chronic pain in America. I didn't even get an answer to my e-mail. I guess it isn't sensational enough.

Again I am not advocating using powerful pain medication except when an individual has exausted surgery and ever other means and still is in unrelenting pain. Of course in my case, the failed surgeries are the reason for my battle for chronic pain.

I also realize that there is a drug problem in many of our high schools. I am a grand father of three children and I watch them like a hawk for any indications of drug use.

My own primary care Dr. told me a few months ago that I would not believe the people that came to his office argueing with the office personal about pain medication. He never did clarify if those people were in pain or were truly drug addicts. I said to him, what does that have to do with me? I am not the type of person that would ever do anything like that, nor would any true chronic pain sufferer. Basicly his practice is based on the fact that because of a few bad patients all pain patients should be treated the same way.

Again you never hear the media talk about both sides of the story. Its just the sensational stories, narcotics, addiction!! So with the exception of people like myself, who are continually researching chronic pain, the majority of the public believes the news media, because thats all they hear. What happens? Nothing. The "silent epidemic" goes on and it takes its toll on people. Many give in and take their lives. Some, like me, go on day after day fighting the establishment and all the time asking God why?

Is the undertreatment of Chronic Pain solely the fault of the medical Proffesion? Absolutely Not!!

2007-05-04T00:12:00.000-05:00

Yesterday I had to take my little dog Aaron to his Vet. for a problem. It is amazing to watch other people, just like me, there with their beloved pets. In my case, I love mine so much, I will spare no expense when it comes to his treatment. His Dr. the Veterinarian is great and I love the amount of time she spends with him, and of course, all the while making sure that I understood everything.

While I was waiting for his appointment, I got into a conversation with a lady in the waiting room, who was also waiting with her "little dog". We talked about pets for awhile, then the conversation turned to "Chronic pain". I was in a lot of pain and even though I never mentioned it, I guess she must have noticed it. We talked about it briefly and then she replied, "my sister has lived in chronic pain for 25 years but now the "Doctors have gotten her addicted to Methadone".

I immediately ran that statement through my mind for a few seconds before I said anything. I then turned to her and said Doctors don't "get anyone addicted". Addiction is a choice, its a behavorial problem and as a matter of fact, it can even be inherited. I also told her that her sister needed to be treated by an "Addiction Medicine Specialist. As the conversation progressed, she finally admitted that her sister had been a drug addict for years, that the family couldn't do anything with her and she was now living on the streets. Then the clincher, she said actually I don't think she was ever in chronic pain, she just wanted the pills. Then she looked at me, almost as if she was reading my mind and said, I guess people like her really hurt people like you who truely need pain medication. I replied, yes they sure do.

So, my point is, this is another part of the problem: Many families will have a member, who they know is a drug addict and most often they have never been in pain a day in their lives. Yet , if they go out in the street, obtain something like oxycontin or whatever, instead of blaming themselves for not getting help for the family member, they choose to ignore it until it is to late. Then they want to go sue someone, whether it be the drug manufacter or a Doctor. Scenarios like this do one thing.

They make it virtually impossible for people who are truely suffering to get help from anyone. I would be remise if I didn't say, this presents a problem for the Doctor who truely wants to help and an even bigger one for the true Chronic pain sufferer.

The Tale of the Floppy Eared Bunny

2007-04-28T00:38:00.000-05:00

"(The Saga of Chymopapain)
As the laboratory staff watched in awe the rabbit's ears began to wilt following the intravenous injection of the enzyme chymopapain. It remained for orthopedic surgeon Lyman Smith to turn this observation into a new therapy for the treatment of herniated discs. Why, he reasoned couldn't chymopapain also dissolve the collagen in a herniated disc? From this basic observation the saga of chemonucleolysis (enzymatic dissolution of disc collagen) with chymopapain (the active ingredient in Adolf's meat tenderizer) was born. It turned out to be a textbook example of how not to do things in medicine including high grade marketing blitz (the " M2H" factor). This resulted in a patient stampede to have chemonucleolysis.
There can be no question but that the M2H factor for chymopapain was one of highest ever recorded. Because it wasn't released by the United States Food and Drug Administration until November 10, 1983 a large cottage industry had been created in Canada starting in the 1970s. This was a modern version of the "underground railroad" where lines of U.S. clients were often passed through enzymatic assembly lines (a process which has become reversed in recent years). The good news was that only a small number of Canadian Orthopedists and Neurosurgeons practiced chemonucleolysis and they were expert at it. But even the doctors became caught up in the hype. One prominent Canadian orthopedic chymopapain advocate stated at a medical meeting that all he required was a "few cc's of chymopapain" to take care of all of his spine patients! The widespread Canadian expertise was unfortunately not also reflected in the United States where approximately 7,000 orthopedic and neurosurgeons took a one day "training" course in this needle technique and pronounced themselves fully qualified to perform chemonucleolysis at their local hospitals (whose credentialing committees nodded in assent) after Food and Drug Association approval. Those few hospitals who believed that some degree of apprenticeship was required by these neo-procedurists typically gave in to the argument that since other institutions weren't requiring such that their physicians would become non-competitive and thus loose patients. Their credentialing committees then rubber stamped this example of poor medical practice and hospital self-interest.
While some of the 7,000 American trainees actually had some prior experience with needling techniques and fluoroscopic imaging many did not. The sad part of this tale is that the inadvertent deposition of chymopapain into nerve tissue as well as the sub-arachnoid space created some horrendous problems (including stroke, paraplegia, and death) for a significant number of patients. Even though injecting chymopapain simply required placing the tip of a needle in the nucleus pulposus of a disc many practitioners learned that this was not as simple as it seemed. These needles often ended up in other locations as shown below.

Observations
The incidence and prevalence of unnecessary, but serious, complications with the use of chymopapain gave it such a bad name that it soon fell into disuse in the United States. Now, one might think that this is was the end of this tale, but it isn't. Chemonucleolysis with chymopapain (or other enzymes such as collagenase) really weren't a bad idea if qualified people were involved in injecting them. The real problem was the high M2H factor which created a feeding frenzy for patients as well as their physicians.
As it turned out, even when chymopapain was injected into the right location there were important associated liabilities. A major example of this was replacing leg pain (by dissolving the disc) with incapacitating back pain caused by the sudden collapse of the disc interspace producing pressure on the facet joints. Another problem was the high level of allergenicity of the drug itself.
Unfortunately the use of chymopapain created new problems for patients. Could the resulting back pain have been addressed?. The answer is yes, by the use of anti-gravitational traction (but it wasn't). After a respectful period of time chemonucleolysis with chymopapain began to re-emerge in Europe in a lower dose application....where it remains today. In the United States it continues to remain unused and shunned. Despite the tale of chymopapain and its unfortunate demise the M2H phenomenon is still alive and well in the over-promoting of medical devices and techniques even today. "

The above article is the property of and used with the permission of Dr. Charles V. Burton
http://www.burtonreport.com/infspine/mininvasprocchemonucleolysis.htm

It is with the discovery of his website and the study of his vast knowledge and material that has helped me endure and understand the truth of the first of many procedures, that would take me down my 25 year (so far) path to devastating Chronic Pain.

The more Doctors I see the more frustrated I get

2007-04-18T23:41:00.000-05:00

This is a photo of me and my little Bichon Frise, Aaron. I don't know what I would do without him, and I don't know what I will do when he is gone. Remember I said earlier that when you live a life of Chronic pain, the first to go are your friends, then your family, but he is always

there, no matter what.

I saw a new Doctor today and got the usual, we can do an epidural shot to which I replied NO! Then the next thing is the no I can't prescribe anything for pain or at least anything that will help.

I look at my little dog that I love so much, the one that is always there for me, yet if I knew that he was in the kind of pain that I am in, that he was suffering like I am, I would take him and have him put to sleep because I couldn't stand to see him suffer. It would be one of the hardest things that I have ever done in my life, yet I would do it out of love for him.

But what do we do in our so-called civilized society for people in unbearable pain. Nothing!! Oh they will do surgery on you just as long as you will let them. More surgery is not going to help someone like me. The damage has already been done. Nerves in your central nervous system don't regenerate themselves. I am not saying that there aren't any good and ethical physicians out there because there are. But I am saying that has not been my experience. I don't entirely blame the medical profession either. Much of it has to do with politics.

The Bush Administrations war on drugs has scared many physicians from prescribing opiods because they are afraid of the DEA. I am no drug addict and neither are the millions of people like me who have to depend on powerful pain medication just to exist, forget about having any kind of meaninful life. Just to exist. So where does that leave us? I'll tell you where it leaves us. Suffering!!! Maybe they should pass a law to make it legal to do what I would have to do to my little dog, Aaron. Just put us to sleep!!

How do we make our voices heard

2007-04-14T00:03:00.000-05:00

Sometimes I really want to give up. But then I ask myself-What does that mean, Kill myself. I really don't want to die. I know that is not the answer. Life is short enough if you have a relatively painless life and besides I love my family, I want to watch my little grand daughters grow up. You can't run away from Chronic Pain. Its always there 24/7. I love this beautiful earth and marvel at "Gods Creation". The government, the physicians and the DEA are so caught up in as they put it "drug abuse" especially the opiods and to a lesser degree the CNS drugs they don't understand that people who are truly in Chronic Pain hate taking drugs, I know I do. For one thing you are always fighting the "side effects" of powerful pain medications. I have a hard time taking anything, even anti-inflamatory, antibiotics and especially opiods. I will never understand how any person who has a love of life as I do, would want to take any type mind altering drug. I guess that is why most people who suffer as I do don't become addicted. They don't even want to take them in the first place. They just want a life. And to their credit, the DEA has issued guidelines and as long as the Practicioner and the patient follow those rules they have stated that they want bother the doctor or the patient. All of the state medical boards have agreed upon the same frame work, but still finding a doctor to help you, unless you have a long term relationship with them is almost impossible. I am sorry to pick on the pain management doctors, but it is the truth. Injecting shots into the Epidural area of your spine rarely helps, they are extremely expensive and they are dangerous. Injecting contrast materials into my spine that have been proven to be toxic is exactly what I suffer from today.
It is called Adhesive Arocnoditis, which is burned nerves in your spinal cord. In spite of that I still have to have two fusions in the lumbar region just for stability. Not only will it not help the main source of my pain, there is a good chance it will make it worse. My wife called my surgeon's nurse over a week ago to set up the surgery and we still have not received a phone call from their office. This is insane!! Why do they do this? I guess, just because they can.

Who is supposed to look out for us?

2007-04-09T22:44:00.000-05:00

All over this country people are suffering. Old people are laying in "Old age homes and hospitals being undertreated for their pain". People from all walks of life are having to endure levels of pain that is an absolute violation of "human rights". The very profession that we are supposed to look to to help us when we are in pain has stigmatized us. Just walk into a doctors office and mention "chronic pain" and you have immediately entered into a "hostile relationship" with the very person that is supposed to help you. They will however, take your money. What is the first thing they ask you for if you are a new patient? Where are you hurting? NO! What is your problem? NO! Do you have insurance coverage? YES, that is the first thing you hear. The healthcare system in this country is an absolute disaster. I know there are many people in this that do not have health insurance, but I have the best insurance money can buy and it has not helped me. Something has to be done to hold the medical profession accountable for not doing what they are supposed to do.

I have suffered 23 years from unimaginable Chronic Pain, not as a result of the original injury I sustained, but because of the medical procedures done to me. But if I try to get a doctor to help with controlling my pain I am looked at with suspicion. Their excuse is I am afraid you will become addicted. This is ridiculous, yet it happens every day in this country and I will fight it as long as I live.

2007-04-06T00:17:00.000-05:00

"There are many minimally invasive spine procedures being performed today. Some, such as epidural steroid injections are often used with little appreciation or understanding of the patient's real diagnosis ("shotgun therapy") and sometimes with no understanding that the patient does not even have an anatomic epidural space (i.e. obliterated by prior spine surgery). Most certainly, in the "physician do no harm" department ill-advised and ill-performed epidural steroid injections have created devastating lifelong problems for significant numbers of unsuspecting patients.

Other minimally invasive procedures such as percutaneous radio-frequency facet blocks (PRFFNB) which have benefited many over many decades are therapeutic, but destructive, in that they cauterize normal nerves to achieve their effect. The value of such a procedure is that the benefit to the patient outweighs the minimal risk."

Source: Dr। Charles Burton, M.D. read more at http://www.burtonreport.com/InfSpine/RestorativeSpineCare,Min-Invasive.htm

If there is one person in this country that I consider an expert on the spine, it is Dr. Burton. I thank him for giving me permission to use some of his information.

As I may have said before, the procedures performed on me in the early 1980s have destroyed my life, yet the very surgeon that I am presently seeing wants to do fusions on the affected discs. But when I try to talk to him about the present condition of the nerves in my spinal cord he want even talk about it. It is like he don't believe there is a condition called "Adhesive Arocnoditis." Evidently they aren't taught the failures in medical school. This much I do know. I will be staying up until 4:00 A.M. in the morning. Why? I am in to much pain to sleep. Try living like that for a few weeks much less years like I have done.

More on my Pain Management visit

2007-03-30T10:56:00.000-05:00

On my second visit My wife was with me again. This Doctor was an anesthesiologist. Aparently, at least in the area where I live, every Pain Doctor is an anesthesiologist and from past experience I knew that he was going to want to inject me with Epidural shots. Not only is this a very expensive procedure, but it is a very lucrative business. Injections in the spineal area can be very dangerous. These type medical practices are being called "procedure Mills" even by other doctors in the medical industry, especially primary care doctors because they know as soon as the anesthesiologists finish their injections they will only send the patients back to them for pain medication. I can not believe that insurance companies keep paying for these procedures.

After he found out my past medical history he did not want to inject me, because at least he had enough sense to know that he was going do more harm than good. He did say he would like to inject the facet joints. I almost laughed in his face. Because of my own knowledge I knew that it was a very conservative procedure, of course he would still get his $2,500.00. My psychiatrist with whom I have had a 15 year relationship has been furnishing my medications out of compassion but I knew that he had no desire to be in pain management.

My wife finally said to the anesthesiologist, O.K. Jerry's quality of life without something to help the pain is a 1. He has no history of any kind of addiction. His quality of life on the medication now is about a 5. Why can't you prescribe medication that will at least give him that quality of life. The Doctor kinda stuttered and stammered around then said well, let me talk to your other Doctors. It was very clear that all he was doing was trying to get rid of us. About a week later I received a letter from him saying that he didn't feel that he could help me, that he had referred me back to my primary care doctor and psychiatrist for them to continue my medication. I was not suprised, I knew it was coming. Something has to be done in the area of pain management so people who are in so much pain receive the proper treatment without being stigmatized as drug addicts.

The Chronic Pain patient and Opiods

2007-03-21T00:12:00.000-05:00

It is not my intention to say that every person who walks into a Doctors office and complains of pain should be prescribed opiods. However the previous statement does not describe a chronic pain patient. These people are like me. They have had numerous operations and other invasive procedures that have not stopped their pain and in most cases has only made it worse. Most chronic pain patients hate taking pain pills. What they really want is a normal life. Below is part of an article from WebMd.

"In the last few years, everyone's heard about the apparent epidemic of prescription drug addiction, especially to narcotic painkillers. We see human-interest stories on the news about regular folks getting hooked on OxyContin or Vicodin. Every few months, it seems, we get another news release from a new celebrity confessing to an addiction. The reports may give you the impression that the lure of these drugs is irresistible, that we're all just a few pills away from addiction.

This leaves many people with chronic back pain -- and often their doctors -- stuck in the middle. On the one hand, they're afraid of the risks of addiction that come with powerful painkillers. On the other, they're suffering from severe and debilitating pain and need some kind of help.
But are the risks of prescription drug addiction really as great as we think?
"There's this buzz that these painkillers are demon drugs being marketed to unsuspecting grandmas," says Karen Miotto, MD, an addiction psychiatrist at the UCLA Neuropsychiatric Institute. "But that's not the case."

There's no doubt that prescription drug addiction can be devastating and destroy lives. But for many experts, the more widespread public health issue is that people in desperate and debilitating pain aren't getting the painkillers they need because of inflated fears of addiction. While opioid painkillers -- like OxyContin, Percocet, and Vicodin -- have risks, they're often outweighed by the benefits, experts say.

Source: By R. Morgan Griffin

And the above is true. I personally know several people in the level of pain that I am in. None of them are addicted to anything. They are just like me, all they want is the ability to have some kind of life.

Chronic Pain: The hopeless world of chronic pain

2007-03-18T02:22:00.000-05:00

Chronic Pain: The hopeless world of chronic pain

The pain management Procedure mills.

2007-03-14T01:46:00.000-05:00

Every day in this country, people are walking into the office of a doctor that claims to be specialized in pain management. As for as I am concerned it is a joke!!! The only thing that is not funny about it is the cost. It is very expensive. Many people end up with more pain as a result of these injections. I am one of those people. The majority of these doctors are anesthesiologists. My primary care doctor wanted me to go to one and even though I had been down this road before, I agreed.

As usual he wanted to do an epidural shot which I knew was coming. They usually want to do a series of three which will cost you about $2,500.00 per shot. After I sat down with him and shared my complete medical history with him, he decided that he didn't want to put a needle into my spine, not that I would have let him anyway. To make a long story short, here I am a patient with pain level of 9-10 on a 10 scale. This so-called pain management doctor lets me walk out of his office without offering to prescribe anything for pain. Why? It is an increasing medical "scam" and they are nothing but "procedure mills" as far as I am concerned. It is very profitable. While I will not name names, I have heard these same feelings and frustrations expressed by doctors especially Primary Care Doctors, because when they finish with their injections, they send you back to your primary Dr. for him to prescribe pain medications, if he is willing to.

I have had 4 surgeries but I have nothing to show for it but more pain. After my last surgery I bitterly vowed that I would educate myself on pain and procedures of the spine and that I have done exactally that. An Epidural shot is more that just the name of an injection. The Epidural is the first of 3 very thin linings that surround the delicate nerves and cerebral fluids in the spine and brain.

This is a quote from a well known Neurosurgeon. I will not use his name because I don't have permission.

"Any substance injected into the epidural space near a prior dural puncture site will inevitably find its way into the subarachnoid space. It would be inappropriate to risk bathing a segment of the spinal cord in ethylene glycol, or any depo-corticosteroid solution". Believe it or not, "ethylene glycol" is one of the primary ingredients in "automobile anti-freeze.

Bottom line, if you have a new injury in your spinal column before you run out and start having injections or surgeries, you better educate yourself, or you will end up like me and 60 million others with nothing to look forward to but a life of Chronic Pain.

Doctors have opiodphobia

2007-03-04T22:39:00.000-06:00

Where do you turn when you walk out of a physicians office after he has just told you that he cannot prescribe anything for your pain because he is afraid you will become addicted? Your pain level is so high that you are wandering if you can make it through the day, yet this so-called medical professional is more worried about addiction than your pain. Something is terribly wrong with this picture. This is what the "chronic pain individual" faces every single day of their life. Opiodphobia!! that is what I call it. It doesn't matter if you have no record of any kind of addiction. It is just like being found guilty before having a trial. If you are a "chronic pain "sufferer you are stigmatized.

I recently changed primary care physicians and started calling around to find a new one. The very first one I called, as I was describing my problems to her and mentioned chronic pain, this was the exact reply. Well I will tell you right now, we don't prescribe "narcotics". This statement only shows the lack of education the medical industry really has on controlling chronic pain. First of all they are not narcotics. This is a law enforcement term. The medical name for these drugs are opiods, opiates or "Schedual II controlled substances approved by the FDA for treatment of severe chronic pain and cancer patients. You don't become addicted. Addiction is a behavorial problem in people, and some of it is even hereditary. People who take street drugs to get high and sometimes people who take drugs for pain and continue after they no longer need them. That is addiction. The correct term is "chemical dependency" which is a normal occurance in anyone who has to take this type of drug. To get off of them when you no longer have to have them, tell your Dr. and he will start slowly lowering your dosage until you are completely rid of them. How do I know all of this. Four back surgeries and multiple intravenous injections, all of which have only made my problems worse and 25 years of sitting up all night reading every piece of medical publication I could find on the internet, watching surgery webcasts, and listening to the surgeons who are not afraid to tell the truth. The person who lives in chronic pain lives the most lonely, painful life in the world.

The medical failures that people with a life of pain have to live with

2007-02-19T01:07:00.000-06:00

I can't describe the level of frustration I feel when I am stuck with a life of pain, especially when I ask, for example, a nurse about a procedure I had that was approved in late 1983, has left me with a life of agony and they have never heard of it. The reason of course is very simple. They don't teach them about it in nursing schools. Most doctors know, but they want talk about it. Even in my present condition, I am still faceing fusions at L4-L5 and L5-S1 and now I also have nerve root impingement at 3 cervical discs. I can hardly wear a shirt because of the burning sensation in my upper back. My pain level has gone from a 4-5 on a 10 scale, which I had for 20 years, to a constant 9-10 level. My spine surgeon has never even diagnosed my cervical area, even though I had a MRI for it about 8 months ago. While he was looking at my lumbar MRI when I ask about the cervical area, he said he couldn't talk about, I would have to make another appointment for that. Sometimes I really want to just give up. Where in the hell is the compassion!! If I were a Dr. myself (which I am not), there is no way in hell I could let a patient walk out of my office with the levels of pain that I have without helping them. But they do every day across this country to other people just like me. Just go to some of the pain forums.
Their excuse is, I am afraid you will become addicted. "Addicted my ass", I am worried about how to live one more day and this so-called Dr. is worried about me becoming addicted. I have said this before and I will say it again. I know there are good physicians. I have one, my psychiatrist of 15 years and I thank God for him. As for as the rest, at least in my life, I have nothing good to say.

Why does the medical Industry never talk about their failures?

2007-02-11T23:04:00.000-06:00

It seems that every time you read a news article and even watch T.V. for that matter, some drug or medical procedure is being hyped. This is where something like chymopapain gets its start. In the press. Then come the big corporate medical lobbies spreading big money around to government agencies, congress and the physicians. Then all of a sudden some drug, device, or procedure gets approved.

But what about the drugs, procedures, etc. that don't turn out so well, you never here about them or at least the patient doesn't. Try getting a surgeon to day to talk about chymopapain, or some of the other harmful substances used in myelography, discography and even still the so-called epidural injections, like Thorotrast, Lipodil, Pantopaque and Myodil, which were all contrast materials used for the above mentioned tests. Well they quietly "fell from disuse", leaving some dead and most "damn cripples" like me and 50 million others and climbing. People doomed to a life of suffering "horrific chronic pain" that nobody wants to treat. Am I angry? Anger don't even describe the way I feel about the injustice and undertreatment of people like me.

True "Informed Consent".

2007-02-03T01:04:00.000-06:00

"Informed Consent" is something that you also rarely get when you go to a doctor anymore, or something that is rarely even mentioned during your appointment. First of all I do not mean to imply that all doctors are bad or unethical. There are some wonderful doctors in all fields but you do have to look for one. I have a psychiatrist that has been treating me for almost 15 years, because with Chronic Pain comes a never ending battle with depression. I do not know what I would do without him. It may be different for some or most of you but in my life, he is the only one that I hold in high esteem.

Everyone has the right to have their condition fully explained to them, and especially if you are having surgery, you have the right to have your questions answered fully and to your satisfication. In my case that rarely happens, especially because of my history with intravenous injections and especially the chymopapain injections. I recently asked two different nurses about chymopapain and they said they had never heard of it. Many surgeons think they are "little gods" and you shouldn't question them. That is exactly what I am talking about with "informed consent". You as a patient have a right to know!!

The "Theory versus Reality"

2007-01-27T22:44:00.000-06:00

In theory, this was supposed to be a good idea. If you had a ruptured disc, which at the time I had 2 of them, L4-L5 and L5-S1 (lower back or lumbar), then they would just inject this Chymopapain into the disc and it would just disolve the disc rupture. In my case it disolved the whole damn disc withen a 8 month period. As if that wasn't bad enough, many Neurosuergons expert on the subject say that the inadvertant injection of the enzyme into the spinal nerves or subarachnoid area of the spinal cord can have devastating and permenant nerve damage. I have a photo of my back showing two large needle marks in the area of L4-L5 and L5-S1. When you look at a MRI of my lumbar spine it is very evident that the injection meant for L5-S1 totally missed its mark. Where did it go? Right into the very place it wasn't supposed to. All over the nerve tissue and subarochnoid area of my spine. Keep in mind, these so-called surgeons had a 1 day training course on injecting a chemical that was used in "Adolphs meat tenderizer into the most sensative areas of the human body. The doctor that performed this procedure on me in 1984 had two lines. Patients waiting to get the procedure and the ones like me who had already had the procedure waiting for their prescriptions for powerful drug medication to help counter the devistating pain. He said it would get better in a few weeks. That was 23 years ago and I am still waiting.

"Falling Into Disuse"

2007-01-24T00:29:00.000-06:00

I would first like to start with what started my downward spiral into the "hellish life of chronic pain". On November 10th 1983 a procedure was approved by the FDA in the United States called the Chymopapain injection or Chemonucleolysis as it was also referred to. By the way this was also the active ingredient in "Adolfs meat tenderizer". Even though I am not a physician, I have spent the last 18 years of my life researching this and ever kind of surgical procedure that has been performed in the last 50 years. I also have been the one on the receiveing end of the scalpel and numerous injections for the last 23 years. Even though Chymopapain was first used in Canada starting in the 1970's, Only a small number of Canadian orthopedists and neurosurgeons practiced Chemonuleoysis and they were expert at it. It was one of the most media hyped procedures in USA medical history according to Dr. Charles Burton a well known Neurosurgeon with a list of accomplishments that most surgeons only dream of having and someone I deeply respect for his continued stance on this and other practices. As soon as it was approved in the USA, approximately 7,000 American surgeons rushed to Canada and after a 1 day training course pronounced themselves fully qualified to perform these procedures at local hospitals. At first the hospitals objected to the short training period but eventually gave in to what I feel is a rediculous practice. Dr. Burton is probably the leading expert on this and many other kinds of surgeries. I urge you to read his report at http://www.burtonreport.com/. There is a popular term used in medical circles that the patient never hears about and that is to "fall into disuse". By allowing these drugs, procedures and medical devices to quitely fall into use, people like you and me never know the reasons why or the potential problems that one may face in the future from having one of these procedures. Even though the Chymopapain injections were performed from the early to late 1980's, today when I mention it to doctors they look at me like I am crazy. Most nurses and pain management centers say they have never heard of the procedure. So where in the hell does that leave not only me, but thousands of other people who lined up to get this new much hyped medical miracle. Very simple, the medical community made millions of dollars from it and also created a bunch of "chronic pain patients", but they don't want to talk about it now. This was my first medical procedure and one that I would live to regret. More on this later. I am in to much pain to continue, tonight.

The hopeless world of chronic pain

2007-01-23T02:17:00.000-06:00

You hardly ever here the words "chronic pain" mentioned especially in the medical field. It is called the "silent epidemic" because so many people suffer in silence. Chronic pain differs from Acute pain because normally acute pain is associated with an injury, a fall, broken arm, etc. Usually you get a lot of attention especially from your family because you were in pain for a while but now you are better. Not so with chronic pain. It never gets better. It is with you 24 hours a day, 7 days a week. It never stops, its always there, unrelenting. Pretty soon even your family stops calling. It can be for a number of reasons. They feel helpless, don't know what to do to help, they get tired of seeing you the same way every time they come around. They don't understand why you don't get better.

I am one of those people. I have lived this way for 23 years and don't think it can't happen to you. Chronic pain knows no age, nationality, or race. Much of it is caused by the very profession that we look to for help. The medical profession!!