Showing posts with label suffering. Show all posts
Showing posts with label suffering. Show all posts

Friday, November 9, 2007

How can you write a blog about Chronic Pain when you are in so much pain?


I was recently asked this question by my Psychiatrist. "How can you write about chronic pain when you are in so much pain yourself". Honestly, it is getting harder to keep this blog updated. In the beginning it was my hope of getting the attention of the medical profession and the politicians. The most rewarding thing is to get comments and I also receive a lot of e-mail from people in pain. I am an advocate for chronic pain through such wonderful organizations as The American Pain Foundation. Chronic pain is one of the most stigmatized diseases in the world, just like Mental Illness used to be and still is to a degree, but not as bad as in the past.

It is only in the past decade that mental illness and psychiatrists have been getting the credit they deserve. In the past people suffering from any form of mental illness were characterized as "being crazy", "retarded", "messed up in the head, sickos". In 2006 an independent study showed that 11% of women and 5% of men take antidepressants. This situation is far from perfect but thanks to scientists and research, we are finally starting to understand the complexities of the human brain and the central nervous system.

Depression and anxiety problems or panic attacks which is a form of mental illness is a problem that Chronic Pain sufferers have to deal with also, especially if you have lived with chronic pain like me, for years. The Psychiatrist I mentioned above, I believe "with all my heart", was placed in my life by GOD. I have been seeing him for 16 years. I have been in Chronic Pain for 25 years. He has treated me for depression and panic attacks for 16 years. He has watched me go from a person with constant pain levels of 3-4 to constant 10 pain levels. He has also watched me battle with back surgeries that only made the pain worse. He has watched me battle the so-called pain management specialists who only want to do their spinal injections at $2500.00 per shot then send you back to your primary care Dr. for pain medication.

Out of anger at what I have been through and compassion for the way I was having to live he made this statement to me. He said, I really have no desire to get into pain management, but I am going to start treating you for your pain. He knows that the medication he prescribes is not sufficient for my pain level but it helps. That was 5 years ago and he still prescribes all of my medication. Not only is he a good psychiatrist but he is a very knowledgeable Medical Doctor. I have nothing but gratification for him and in my life he is one of about three in the medical profession I can say that about.

Chronic Pain is a disease and finally research is starting to reveal the complexities of it. It will not be in my life time that the "he is only wanting drugs because he is an addict" stigma will be lifted. In the meantime myself and about 60-70 million others will continue to "suffer in silence".

Monday, July 23, 2007

We the People or at least thats how it is supposed to be.


I have said this many times and I will keep on saying it. No person in America, the most advanced country on the face of the earth should have to suffer from the levels of pain that myself and millions suffer but we do!!! Aren't we supposed to be a civilized, and compassionate society? Very Simple. Big Business in the form of the medical profession and politicians who once elected don't have time for one person like me. There are a few who care. Congressman Mike Rogers has been trying to get the bill below through Congress since 2003. I am in to much pain to write much tonight, but I am begging you to go to the link at the end of this post and call, write, or e-mail your political leaders and ask them to support this bill.

National Pain Care Policy Act Introduced in the U.S. House of Representatives!

Millions of Americans who suffer from pain could soon find relief thanks to legislation introduced in the U.S. House of Representatives today. Representatives Lois Capps (D-CA) and Mike Rogers (R-MI) introduced the National Pain Care Policy Act of 2007, which would improve pain care research, education, training, and access. The pain community has been instrumental in joining forces to support and advance this important legislation.

Key components of the bill include:

The authorization of an Institute of Medicine Conference on Pain Care;
Permanent authorization of the trans-institute Pain Consortium at the National Institutes of Health;
The creation of a grant program to improve health professionals’ understanding and ability to assess and appropriately treat pain; and
The creation of a national public awareness campaign about pain management, conducted by the Department of Health and Human Services, with particular attention to improving access to appropriate pain treatment among underserved populations.

Please click on The American Pain Foundation link below for more information.

The American Pain foundation