Sunday, November 18, 2007

Veterinarians receive 3 times more training on pain than doctors and nurses


This is a Canadian survey, but I believe it and it is probably worse in the USA. I also recently learned from a reliable survey that "old people" are the most undertreated for pain, followed by "children", then "women". "Men in the 30 to 45 year old range get the best pain treatment".

"Toronto - A recent survey for the Canadian Pain Society found students in veterinary medicine received an average of 98 hours on pain education, while medical students spent about 16 hours studying the subject.

Among the vets in training polled in the University of Toronto survey, the least amount of specific pain education received was 27 hours, whereas some medical and nursing students admitted they'd received no training on pain at all.

Nursing students spent an average of 31 hours on the subject of pain.

"All the veterinary colleges had way more hours than medicine, nursing, dentistry (and) pharmacy," said lead researcher of the study, Judy Watt-Watson.

She told 680News a stubborn stigma around chronic pain is playing a role. "There are chronic diseases related to pain that we can't take an X-ray of," she said.

One in four Canadians have suffered from chronic pain, according to researchers, who suggest training on the subject should be mandatory, not elective, in more medical schools across the country.

The society said this lack of training is leaving Canadian health care professions inadequately equipped to treat pain-related problems".

Source:Taiwo Lewis
.680 News


I receive a lot of e-mail from people all over the world, especially Canada, New Zealand, UK, and of course here in the USA and it really doesn't matter where, its the same horror stories and the same stigma no matter what the country. It is also a damn disgrace.

I will leave my first bit of education for the medical profession. Here is the stigma. "I am afraid you will become addicted". That statement in itself is wrong. You don't become addicted. Addiction is a behavioral problem, part of it even hereditary, where by people get medication for the high, the euphoric feeling and most have no chronic pain problems.

Chemical dependency is the correct word and is a natural occurrence when people have to take powerful medication for a pro-longed period of time. All you do is start slowly reducing the amount of medication you are taking until you are off of it. As a matter of fact "addiction" and "chemical dependency" take place in two totally different areas of the brain.

How do I know? Because I have gotten off of powerful opiods myself, seven or eight times. If I felt like I needed help getting off of them, I would tell my Doctor and ask him to help me. Why, because like the majority of people in chronic pain, I am not a damn drug addict.

Friday, November 9, 2007

How can you write a blog about Chronic Pain when you are in so much pain?


I was recently asked this question by my Psychiatrist. "How can you write about chronic pain when you are in so much pain yourself". Honestly, it is getting harder to keep this blog updated. In the beginning it was my hope of getting the attention of the medical profession and the politicians. The most rewarding thing is to get comments and I also receive a lot of e-mail from people in pain. I am an advocate for chronic pain through such wonderful organizations as The American Pain Foundation. Chronic pain is one of the most stigmatized diseases in the world, just like Mental Illness used to be and still is to a degree, but not as bad as in the past.

It is only in the past decade that mental illness and psychiatrists have been getting the credit they deserve. In the past people suffering from any form of mental illness were characterized as "being crazy", "retarded", "messed up in the head, sickos". In 2006 an independent study showed that 11% of women and 5% of men take antidepressants. This situation is far from perfect but thanks to scientists and research, we are finally starting to understand the complexities of the human brain and the central nervous system.

Depression and anxiety problems or panic attacks which is a form of mental illness is a problem that Chronic Pain sufferers have to deal with also, especially if you have lived with chronic pain like me, for years. The Psychiatrist I mentioned above, I believe "with all my heart", was placed in my life by GOD. I have been seeing him for 16 years. I have been in Chronic Pain for 25 years. He has treated me for depression and panic attacks for 16 years. He has watched me go from a person with constant pain levels of 3-4 to constant 10 pain levels. He has also watched me battle with back surgeries that only made the pain worse. He has watched me battle the so-called pain management specialists who only want to do their spinal injections at $2500.00 per shot then send you back to your primary care Dr. for pain medication.

Out of anger at what I have been through and compassion for the way I was having to live he made this statement to me. He said, I really have no desire to get into pain management, but I am going to start treating you for your pain. He knows that the medication he prescribes is not sufficient for my pain level but it helps. That was 5 years ago and he still prescribes all of my medication. Not only is he a good psychiatrist but he is a very knowledgeable Medical Doctor. I have nothing but gratification for him and in my life he is one of about three in the medical profession I can say that about.

Chronic Pain is a disease and finally research is starting to reveal the complexities of it. It will not be in my life time that the "he is only wanting drugs because he is an addict" stigma will be lifted. In the meantime myself and about 60-70 million others will continue to "suffer in silence".

Tuesday, October 23, 2007

It makes sense to me.

I had the good fortune to find a Neurosurgeon who has more certifications and belongs to more medical organizations than anyone I have come across. I just wish more surgeons would read his material and take some of the advice that Dr. Burton offers. He is certainly qualified to give it.

The following is from Dr. Charles V Burtons Burton Report


"It is remarkable, but true, that most people seem to spend a great deal more time in selecting downloads for their iPods than in selecting a spine surgeon. This is unfortunate because it is an important decision which often dictates a patient’s long-term quality of life.

Medicine is a profession, as many others, where prevailing therapeutic approaches may be, in fact outdated. There was a time, not too long ago when diseased hips, knees and ankles were routinely fused. Then the era of artificial joints changed this previously universal approach.

Spine surgery is still being held hostage to the "fusion" mind set. The spine is inherently flexible and forcing it to become rigid over many segments is the cause of significant stress related continuing problems. The result of this continues to be the inordinate production of "failed back surgery syndrome" patients.

It should seem readily evident that the architects who design skyscrapers include some flexibility in case of external stress such as hurricanes or earthquakes. If they do not do so these structures collapse. The same is true of the human lumbar spine and this is an important part of restorative spine surgery.

The need to reduce spine surgery failure has led to the advent of more physiologic, motion preserving, spine technologies of which artificial discs have probably received more than their fair share of M2H attention. It continues to be a sad, but true, story that some of the very best treatments often are associated with less commercial profit expectations and thus become medical "orphans" ignorant of William of Occams' Razor. Flexible stabilization systems and artificial disc nuclei exist today as well as restorative neuroradiology where polymers are injected.

It is essential for patients to become aware of all valuable options and search out those associated with less risk and higher efficacy. In spine surgery motion-preserving reconstructive (restorative) spine surgery represents one such important choice."

The information in quotes is the copyrighted material of Dr. Charles V. Burton and used with his permission. If you want to get a lot of information on the human spine and surgery, I suggest you visit his site below.
http://www.burtonreport.com/InfSpine/RestorativeSpineCareSurgical.htm

Wednesday, October 10, 2007

Undertreatment of Pain: A National Disgrace


These are the words of Professor Ronald T Libby, in a commentary on pain that appeared in "The Pain Community" a monthly news letter published by The American Pain foundation this month, and he is exactly right.He reaffirmed what I have been saying, that most experts agree that right now there are approximately 76 million people struggling with Chronic Pain. Even though I have focused on the spine mostly, there are a host of other diseases and injuries like cancer, diabetes, rheumatoid arthritis, fibromyalgia, migraines, Hiv/Aids and other trauma from injuries. Even our veterans returning with all types of traumatic injuries are faced with not getting treatment for their injuries and that is a damn shame and a disgrace. If patriotic soldiers who have sacrificed themselves for the defense of their country do not receive adequate pain treatment for combat related injuries, what chance does the rest of the population have of getting pain relieving treatment. The reason for the failure to provide life giving pain relief to patients is the pervasive fear of prescribing opioids, narcotics. The societal enforcer of opioid-phobia is the DEA,(Drug enforcement agency). I really don't blame them entirely and this is why. Much of the problem lies with the powerful committees and sub-committees in Washington, D.C., playing to the cameras for their own selfish gain. Have you ever watched a cabinet member or a department head testifying before them on C-Span. The want more results on the drug trafficking trade so they go after the Doctors who are trying to help people like me and millions of others. Hey you political bastards, we are not Drug addicts. We are people suffering to the point of taking our own lives just to get away from the pain. This medication was approved by the FDA for the purpose of helping people like myself and Richard Paey live.

The biggest problem of all is the disinformation or misinformation by the damn News Media. They will talk about some pro-athelete overdosing on steriods for a month, or some celebrity getting picked up on a drug charge, but they will not devote one minute of time to some of the Chronic Pain Advocacy groups appearing on T.V. to tell the truth about the Chronic Pain undertreatment disgrace going on in this country at this very moment and it affects millions.

Friday, September 28, 2007

Some good news for a change!!


Tonight I get to write about something good in my pain filled world for a change. Richard Paey who was a 47 year old Ivy-league lawyer with a wife, children and a good future was injured in an automobile accident a few years ago. He ended up with spinal cord injuries and from what I have read about him, he ended up with a botched surgery to make things even worse. After that a life much like my own, of agonizing pain.

Long story short, he was charged with possession of narcotics in Florida my home state by an overzealous prosecutor and sentenced to 25 years in prison, even though the man was in a wheel chair and in unbearable Chronic Pain. Many organizations including one that I am a member of The American Pain Foundation appealed to then Governor Jeb Bush to grant the man clemency which he refused.

Well GOOD NEWS!! Thanks to Governor Charlie Crist, Richard is out of prison wheel chair and all. The irony of it all is he was getting better treatment in prison,(implanted morphine pump) than before he went in. The picture I am using above is actually one of his cartoons he drew while in prison. Thank You, Governor Crist, for your compassion, and Good Luck to Richard. I hope you get the treatment you need.

The following is an update by The American Pain Foundation. who worked so hard to get him released.
____________________________________________________________________________
Richard Paey Granted Full-Pardon and Clemency

Richard Paey, the 48 year-old pain patient who was sentenced to 25 years in jail in Florida for "drug trafficking," was granted a full-pardon and clemency Thursday, September 20, by Florida Governor Charlie Crist and his Cabinet. The Governor's pardon and clemency order illustrates the kind of understanding and compassion that needs to be much more present in our medical system and in the ranks of law enforcement, regulatory, and prosecution systems.

The American Pain Foundation applauds Governor Crist’s sensible and compassionate act in righting a situation that should have never gotten so out of control. The American Pain Foundation also commends the tireless work of the Paey family in motivating and galvanizing the pain advocacy community to take a stand against the unfair treatment of people in pain. The emotional and financial toll inflicted on the Paey family by Florida law enforcement is simply unacceptable.

Richard's prosecution symbolizes the moral decay of our law enforcement and prosecutorial system that chose to see a person in severe chronic pain as a criminal and drug dealer rather than an individual in severe medical crisis seeking a solution for his pain. Law enforcement and prosecutors are not medical experts and should not be permitted to perpetuate a state of fear among people with legitimate pain needs and the medical community that serves them. Richard’s case is a shining example of what can happen when law enforcement and drug abusers dictate medical policy.

Treating desperate pain patients and doctors who treat them like common drug dealers is insane. There should never, ever, be another case like Richard Paey. The American Pain Foundation is committed to supporting the rights of people in pain through education and advocacy. Efforts to prevent the diversion and abuse of pain medication must be balanced so they do not interfere with appropriate and effective care for people with pain.

Source:http://www.painfoundation.org/

Friday, September 14, 2007

It would be nice to hear the TRUTH!!!


I walked out of a spine surgeon's office about nine months ago not believing what he had just told me. I had pretty much made up my mind to have another surgery, this time a fusion of L4-L5 and L5-S1 discs. As I started to leave I ask him if he was sure that this would help me. He replied and I quote "Sure, you will feel so good that you will come back for another one". I couldn't believe what he had just said.
I looked at him and replied "in your dreams". This doctor is supposed to be one of the best minimal invasive surgeons in the country but I have done to many years of research on spine surgery to believe a statement like that. It seemed totally out of character for a professional and I never went back to him.

What ever happened to True Informed Consent. I will tell you where it is, it has fallen by the wayside by many Spine Surgeons. To be fair and thanks to the internet not all surgeons are this way. There are many good and ethical surgeons that are up-in-arms about things such as this. That is why a group of surgeons have started theAssociation for Ethics in Spine Surgery.

"In a study published in WebMD done by a group of Surgeons at Switzerland's University of Lausanne Medical Centre, Dr. Bertrand Graz and his colleagues state that "Doctors overly Optimistic about back surgery". In their study a total of 197 patients were included for back surgery. Prior to operating, their surgeons were asked to predict how much surgery would improve their patients quality of life. The surgeons predicted that 79% of patients would have "a great deal of improvement" and 20% would have "moderate improvement". A year later when questioned, 56% of the patients reported no significant improvement in their
health. The article went on to say that this was not the first study that surgery is not the cure-all for low back pain that many patients think it is, or the first to suggest that surgeons do a poor job of predicting which patients will benefit the most from back surgery."

My own personal feelings after having three surgeries, I don't think there are any cures for spinal problems at the present time. Maybe someday there will be. In the mean time the pain goes on.

Friday, September 7, 2007

A very bad Day!!


I am sure that most people who live with the levels of Chronic Pain that I do will tell you that one of the worst things about it is the Loneliness. It eats you alive because all of a sudden people don't have time for you and Yes "THAT INCLUDES YOUR OWN FAMILY". Even writing about pain when I am in so much pain at times is almost unbearable

Most of the time I do a pretty good job of keeping things in perspective but today wasn't one of them. My ex-wife, the mother of my two sons is dying of lung Cancer. My youngest son has always run from reality when it comes to things like that. He called me last night to tell me that she was back in the hospital and then got upset with me because he said he didn't like the way I reacted. When I asked him to explain what he meant he couldn't.

I had called him two or three times previous this week and of course I got the same answer that I have gotten for years. Dad, I am busy right now. I will call you right back. He didn't of course but I have grown use to it because he never does. Neither of my children call me any more to ask me how I am doing, if they can do anything for me, however they will call if they need something from me. Strange? Not really.

People can relate to cancer, heart problems, strokes, lung problems and I could go on. Just the word Pain, or Chronic Pain just doesn't seem to register in the human mind as being anything serious. Hell, what can you expect when most of the medical profession feels the same.

Sometimes I want to just stop writing even stop trying to even think about it. It is hard to believe with so many millions of people in this country in pain that it continues to be ignored especially by the state and federal law makers. I thought in this country you were presumed innocent until proven guilty, yet the majority of people that have had surgery after after surgery and still live in unbearable pain are stigmatized as just drug addicts. This is absolutely pathetic. Even many of the fighting men and women who have sustained severe damage are running into the same problems. This my friends is a disgraceful shame.

Saturday, August 25, 2007

Why do I even bother writing a blog about pain?

Photo of me 8 months before my injury. The real damage was done by the surgical procedure that followed.
I have asked myself that question a lot lately. After all, no one wants to read about pain. Most people have the perception that bad things only happen to other people. Actually I guess I felt that way myself at one time. Its just human nature to not want to talk about painful or unpleasant things. Like so many other people who live in Chronic Pain, I ask myself more and more every day, Why even GO ON. Why not just put a stop to all of the pain, the sleepless nights.

Even taking pain medication gets very old and I will never be able to understand why anyone would want to take strong opiates that don't need them, because they all have side effects. Personally I think that people who take opioids just for the feeling are unhappy with themselves, with life. The news media makes it harder for people like me to get help because of their biased reporting. I'm not that way, I get high off life, and this beautiful country that GOD has blessed me with. That is one of the reasons that I cannot bring myself to take my own life. I am a man of God and I don't believe that is my call to make.

Someone once ask Rev. Billy Graham if there was a God, why did he allow little children to suffer and die young? Actually it was on the "Larry King Live Show". Rev. Graham looked at Larry King and replied I DON'T KNOW. He went on to say, "If we knew all of the mysteries of God then there would be no reason to worship him. He is absolutely right.

Do I believe there is a God? With every fiber in my body. Why hasn't he healed me? I don't know because I have prayed for him to do that. The best thing I have going for me is when I walk outside about 4:00 A.M. in the morning, which is about the time I go to sleep and look up at the beautiful universe I know his "Holy Spirit" is with me. That and my family is what has kept me going, along with the hope that if I write long enough, the medical profession and the politicians will do something to help me and the 60 million people in this country of all age groups who suffer as I do. It is time for both of them to put an end to the unfair stigmatization of Chronic Pain sufferers being drug addicts. It is a lie and I challenge any of them to show proof of it. They want do that for one reason. THEY CAN'T.